Inoperable stage 4 bowel cancer

FormerMember
FormerMember
  • 6 replies
  • 119 subscribers
  • 1909 views

Hi there, 

Ive been on here since March when my 39yr old brother was diagnosed with BRAF mutant MMR intact rectal cancer. He had an emergency procedure to remove the blockage in the rectum that he was admitted with. This was when he was diagnosed with complete shock. In April over the phone, he was told he was inoperable and sent home with a stoma & to commence Folfoxiri. It’s been a tough time for all the family, he has 5 young children & a wife to care for. 
Fast forward to his 10th round of chemo, we have had amazing shrinkage on 2 of his tumours down from 28mm to 11mm and 12mm down to 6mm and other lymph/areas remaining stable. He has coped so well with this treatment, even though the side effects can get him down, he doesn’t let it stop him. A day after chemo he’ll be out painting and tending to his horse he has stabled. On Monday he was given the news by his oncologist that due to his shrinkage results, his scans were being put to a meeting this week in order for him To receive the surgery they said he’d never have in Basingstoke Hospital. This news has cheered everyone up after a down weekend. I’m sure you all get Those where you feel “why me, why us & the thought of another round of chemo makes you feel sick” but the chemo is working and the strength he shows us all is just amazing! It’s lovely for me to share any worries & thoughts on this group for help & advice .

thank you all 

  • FormerMember
    FormerMember

    Hi Shazz1

    So pleased to hear the news about your brother, I hope he will be able to have his surgery soon.  

    I am also so glad that our group has helped you too.  Seeing someone you love go through surgery and chemo is so hard and just knowing that there is somewhere you can share your feelings and worries is to important.

    You mention that your brother has been spending time with his horse.   I am sure that the time spent with the horse  has contributed to him coping well with his chemo.  My daughter has stables and as well as normal stable activities she uses her horses for equine therapy. (They are all specially trained for therapy).. She works with children and young adults with autism, learning difficulties and behaviour problems and she also helps people to cope with stress.  When I was diagnosed I just wanted to be with her and the horses and I am sure that they helped me.  My daughter is over 175 miles from me and I have really missed visiting her and the horses during covid.

    Sending best wishes to you, your brother and his family.

    Take care,

    VickiLynne

  • FormerMember
    FormerMember

    Hi Shazz1

    Fantastic news about your brother and I am so happy for all of your family.

    Thank you for sharing this with us all, it's great to hear positive stories.

    Take care xx

  • Absolutely delighted for you all . That’s is a fantastic response to chemo and a great encouragement to all those starting out on a difficult journey .

    So great when chemo turns inoperable to operable . I wish him every success with his surgery and returning to full health .

    He sounds very strong within himself and has had a good team behind him . I totally admire him pressing forward despite a pandemic and a difficult diagnosis.

    take care ,

     Court 

    Helpline Number 0808 808 0000

  • Keep strong and take each day as it comes. 
    Brave man deserves the news that he is now operable. All my positive thoughts are with you both.

    take care

    paula 

  • Wonderful news so pleased for you all

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • FormerMember
    FormerMember

    Hi Shazz1, this is great news for your brother and family!  It’s lovely to read something positive and I wish your brother well x