Written Off??

Hi ,

I remember well seeing the written reports and my heart sinking . However Palliative care is such a broad umbrella term that I think at the crux of the matter means that whilst they can’t aim for a cure they can aim at stability , maintenance etc a bit like some heart conditions . They require to be medicated . It also greatly helps the health economists to come under labels to allow future budget planning but they are limited in every other regard . My mum is still classed as a palliative patient 11 years into the process and never has been told she is cured . She does however have a good quality of life and has spent all morning scrapping her whitewash off the walls so I can give it a good paint . She has issues but so do most others of her age . The last ten years of her life have been good once she learnt to live with a cancer diagnosis and the variable hurdles it brings with it . But it is possible .

The anxiety is totally understandable as you are in the very early stages of this process and it takes time , a lot of time to balance out emotionally from what I can see.

What helped us in the early days was to reaffirm that the information was something we already knew , that seeing it in print was hard . But there was still lots of hope in achieving a good response with chemo . Just to put that into context a year after my mum’s diagnosis I nearly fell off my chair hearing the surgeon recap her situation and I had to keep reminding myself often it was something I already knew and we were seeking a plan for going forward. 

Tough day for sure but some people respond very well indeed to chemo .

take care ,

 Court 

I’ve just come off the phone after a lengthy conversation with Kelly, a Macmillan oncology nurse. She is chasing up an appointment for me asap so that we can get a plan in place. She too stressed that I shouldn’t feel ‘written off’ and that there’s a plan ahead. I can now enjoy the weekend and look forward Monday and hopefully an appointment. Thank you Macmillan team

hi there just wanted to say i hope you can get a plan on asap like every day on, im a 48 year old just had op to remove tumour in bowel been bleeding for a year prior and knackered, i was a fit musician before not a worry, i blitzed it with garlic lemon chemo surgery and positive praying, i know it knocks the earth off axis i got my diagnosis xmas eve 2019, so been a crazy year, from very aggresive t4 now its out but must keep a vigil, pulverize the graveyard in the gut, happy to talk, kind regards j

Hi John, apparently we have music in common with our cancer. My colon tumour is right at the far end and is said to be inoperable because of multiple mets on the lungs. I still have to get an appointment to see an oncologist regarding chemo or whatever they can offer. Every week feels like a month when you’re just waiting. I’m 72 and quite fit for my age and ready to do battle. I just need some help from an oncology team. I played bass many years ago until the band broke up. Then came marriage, family, career (not in music) home ownership, retirement and then got back to Bass and Ukulele. It was a lot of fun for an oldie like me to relive (not really) the wild days. Then this ... 

Take care John and keep fighting.   Peter

all cool peter yes waiting for me was tough 3 months, the word sounds heavy, but as i was told this isnt going to go like fire, and nodules on liver dont seem active though i was late getting my camera after bleeding nearly a year and removing rectum, folfox and a few hardcore waterfasts obliterated the tumours, lemon water for an alkaline state and tumours cannot grow without fuel, garlic 6 cloves in stews daily for  months and months, i was going to the toilet 15 times an hour at one point nothing but blood, but head keeps on, i was a pro drummer but started on bass in the 80s, loved my cream hendrix emerson lake sabb zepp etc,i truly believe if the body made this clogging sugar eating nasty it can change it too, and a lot of change but lemos garlic water fasting, got me a long way, chris wark has good advice and interviews breaking down all different approaches too pete, chris beat cancer on youtube, any help i can be mate, think of that birdsong and breaking sun man, they never give up on you, lemon garlic ginger tumeric vit d is a good start :)