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FormerMember
FormerMember
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Hi All

I have been started on Irinotecan and am suffering terrible loose stools day 4 of treatement - how long does this continue for.  

Secondly I notice this treatment is for bowel colon cancer but I have stage 4 ovarian cancer (not primary source as this can not be confirmed) how many cycles of treatment should I receive and what sort of questions should I be asking my ongoloist - this illness is a mindfield and I feel so low - I am only 47 and feel like the watch is ticking with so much to do.  I am usually positivie but I am so angry at the moment.  If someone could help me out a little that would be great.

Jackie

  • FormerMember
    FormerMember

    Hi Jackie (Jaccmac72)

    First of all may I say hello and welcome to our forum.  

    I can fully understand that you are confused, angry and feeling so low.  It can be hard to understand all that is being said to you at first, as you say a real minefield.

    Research has shown that drugs developed for one cancer can successfully be used to treat another cancer, and your team will be using the drug that they feel is best for you at the moment.

    Sometimes a secondary cancer can be found before the primary site is established, and your team will be working hard to find out where the primary is.

    Everyone's reaction to chemo is different, so it is hard to say how long your side effects will last, but you should mention them to your chemo team as soon as you can, as they may be able to prescribe

    When you receive a cancer diagnosis you should have been introduced to, or given details of, your Cancer Specialist Nurse or Key Worker when you had your initial appointment with your consultant.  The Specialist Nurse or Key Worker is there to support you throughout your treatment and should be able to answer your questions or speak to the consultant on your behalf and get back to you with the information you are seeking.  Having said that, as your primary is not known at the moment they may not have appointed one for you as yet, and if that is the case, speak to your consultant's secretary and she should be able to give you contact details of the ovarian cancer specialist nurse who should be able to offer support.

    Macmillan have a help and support line, the number is 0808 808 00 00 and it is available seven days a week from 8:00 am to 8:00 pm and you can ask to speak to someone for emotional support or for any cancer related matter.

    Take care,

    VickiLynne