New to the group...

Hi,

i am sorry that you feel like you do. Try to get some time Edith your horses and dogs - they will pick up that you are low and know you are poorly. This means extra special cuddles from them.

you are doing well. I would not worry about weight gain - this is important for your body to fight against the cancer. You need your strength. Do not look to loose any of the weight, eat what you like.

Neuropathy is not great for your hands and feet. Speak to oncologist if it gets worse.

Good luck and ask any questions - everyone on this site has been where you are and only want to help. I found this site my salvation.

take care and good luck

paula xxxx

Thanks Im better than I was but its been a tough early start as the first 2 cycles didnt go anywhere near as they hoped ..I ended up delayed for the second one and in hospital with high temperature on the second one so the thought of another 4 to go was dire..at least now im over half way I guess

I get to take the dogs out and see my horses when i feel well but sometimes I can go 10 days without a trip out and I find that mentally challenging I think but im focussing on August when I will hopefuly be over the first stage of treatment...

I had to have the levels reduced after the first cycle and that has helped with the sickness and white cells I hope ..the Neuropathy is manageable at the moment thankfully..altough even on hot days I have my flluffy socks on which is a wierd look for sure!!

thanks for the message and I will drop in from time to time..I find if I overthink it things get very dark..being ill in a pandemic is pretty grim as the isolation is a hard thing for sure..

Hi there,

I had a rough time with my chemo - in A&E on 2 separate occasions , the first time i thought i was having a heart attack and on the second trimester because i was very dehydrated.

i found the first 4 days bearable because of the antisickness drugs i wax taking ( EMEND was the best), plus steroids. Then i would be poorly (sleeping a lot) from day 5 to 10. My week 3 i started to feel almost normal!!!!!

i never thought I would be able to finish my 8 cycles - but i did. The turning point for me was getting over half way and turning up for my 5th cycle, i felt i was on the home stretch. I also thought if i am feeling really unwell hopefully the chemo will be kicking the ass out of the cancer.                 

I feel for you , but keep going -         There is light at the end of the tunnel.

i still feel (with Covid 19) that i am either waiting for the bus or on the bus........if you get what i am saying.

Take care

paula 

Big welcome from me too ! 

It is such a difficult time to receive a diagnosis without the normal support structures and limited contact with clinicians so I can totally understand why you feel left to muddle through this . Hope we can give you a bit of a hand . Reducing the fear and isolation really is important.

You sound a bit like my mum , she told them from the outset not to mention any prognosis to her . She was having none of it . She had a spread to her liver and has also had a smaller spread to her lung , however she was initially diagnosed back in 2009 with a substantial spread to her liver . She has had many many good years treatment free after the initial few years . She has had over 30 scans and they take really good care of her .

All the best with your treatment and I am glad you reached out . 
Court 

Thank you and yes I guess I am a bit like that..I feel if I knew things were really bad I wouldnt fight and I have to travel with hope as they say...I think its hard as all ive had is a 15 min consultation with the oncologist and a telephone call prior to that from a consultant who is the operation side of things who just said I had picked a bad time to get sick...I think the liver spread is the fear as they are doing chemo first then operations to see how it responds..Im hoping to know more later in the Summer but for now Im just trying to remain well and positive going forward ..Thanks for the support x

yes the first 2 were awful,.the first one I was so ill from sickness and weak I just had to stay in bed...yes this time I have had Emend and steriods..had no sickness but they make me soo fatigued...I just slept all the time..this week is better and I managed a dog walk both days so far but my emotions are dreadful and I had a sort of panic attack the other day but I think that might be a steriod crash . I have my pre chemo oncolody call tomorrow so im going to talk it through..I def feel better this time so maybe I will just have to cope with the other side effects to get through the remaining 3 cycles..

~Yes like you I try to imagine the chemo sorting the bloody cancer out and that does help ...Im hoping things wont  be delayed re covid..so far its worked in my favour as scans and things were not being booked so I was able to get them in days rather than weeks as so many people didnt want to go to hospital etc...

Thank you for the encouragement..and hope you are keeping getting better xx