Good morning I've been diagnosed with bowel cancer but because of lots of other medical problems an operation is not an.option Is there anyone out there the same as me ...told we just have to take each day as it comes.
Just want to welcome you to the forum . Sorry to hear your news and some people do report to having the same advise given . Does that include chemotherapy ? We do have a group here for patients only who have a diagnosis that won’t lead to a cure . I am going to tag in as she has found it to be most useful and I am sure would be happy to welcome you there too . It covers all cancer primaries . You are also welcome to stay here with us and we would be most happy to support you but both options are available to you . The group is called “ incurable cancer “ patients only !
Glad you reached out to us and hope we can be of some help ,
I just wanted to say hello and also to welcome you to the forum. I am sorry to hear of your diagnosis but I see Court has been in touch with useful information and hopefully Nikki will be in touch with you soon.
If chemo is an option there is lots of research going on at the moment into side affects which will hopefully make treatments more suitable and available to people with other medical problems.
Keep in touch to let us know how you are getting on, we are a very friendly and supportive group on here.
Don'r give up, write to a Ms Adams, clever Surgeon, was in Plymouth, I believe somewhere up North now, but Cancer Nurses would give you details I'm sure (their number 01752 439473). Bowel Cancer, had to cut out a bit and join remainder, apparently, I bled like a pig, but I'm still here two years later. Good job, as I thought I was a goner. Find it hard to believe cannot operate, but if so, make sure you have stacks of morphine. I guess you know, pain is rather nasty.
Vicky, I know nothing about chemo, refused when I was cleared of bowel cancer. Not sure about your bowel cancer now, mine was horrific pain, maybe different for you? I'm no Doctor, but sympathise, it's a bitch whatever!
Hi sorry that I am late to the party, chemo got in the way. The incurables forum is wonderful, so many stories of beating the odds, so called incurables many years down the road still living a good quality of life. One of the most memorable things said to me from a inmate (thank you) i was that she spent too many years waiting to die before she learnt how to live. Getting to a good place in your head takes time and tears, so be kind to yourself. Also inoperable now may not mean forever inoperable and chemo, immunotherapy, targeted therapies and various cyber knives have turned previously inoperable people to operable.
Finally on this wave of possitivity some people have gone onto treatment whilst they get themselves fitter. You haven't said very much about your existing conditions or your cancer but there is a lot of advice around, and you can get a second Drs opinion who might see possibilities that your current team can't.
So in summary my advice would be, take your time to take everything in, (it is devastating, I am not denying that) do some research for yourself and then find those big girl panties and hitch them up high (big boys pants also available) and see what you can do about it. There will be things you can do to make life a bit better.
