I had an operation two years ago for removal of a rectal tumour. Some two months ago I had a reversal. I wear incontinence pads and developed a severe nappy rash. This is only now clearing up. However, every time faeces is passed it burns my skin. This is so intensely painful that I must immediately wash down below and change the pad. It mostly occurs during the night (up to 6X). It is extremely debilitating and I get little sleep. I am pretty well housebound after eating. In fact, I am becoming scared to eat.
Obviously, my faeces, for whatever reason, have become too acidic. I have been prescribed Lansaprasole but there is little improvement.
Any suggestions?
Thanks.
Hi
That sounds very uncomfortable indeed . I don’t have the experience but wonder if might know of someone on the forum who might be able to be tagged in with the relevant experience.
He has a lot of information over the years and might be able to point you in the right direction .
Take care ,
Court
Helpline Number 0808 808 0000
Thanks to court for bringing me into this conversation.
It is very usual to having a burning bottom after undergoing a reversal due to the number of times you visit the toilet.Im not too sure if Lansaprasole will help as it is a drug for helps to reduce the amount of acid the stomach makes.
When you wash you bottom you should only use warm water and wash thoroughly and pat dry using a soft towel, avoid fragrant toilet tissue, and apply a barrier cream such as Sudocrem Antiseptic Healing Cream or e45 antiseptic cream, you might find some relief by having sea salts baths using salts such as Fleur de Sel which comes from the French coastal region of Brittany or from nearer home Maldon Sea salts or Jersey or Cornish Sea Salts, harvested sea salts are claimed to have medicinal properties as opposed to Saxo Table salt.
If it continues you could ask your stoma care nurse for advice.
I'm sorry but I'm no real expert on reversal complications but would like to take this opportunity to tag my friend Kareno62 into the conversation, Karen had her reversal a few years ago and will share her experiences with you.
If it's any consolation it does get easier but when I can't say, sorry.
Ian
CC
Another few thoughts, as I went through this. It does get better over time Did you have a Low Anterior resection? If so look up (LARS). Try going back to a low fibre diet for a few weeks and add in veggies slowly. Eat your main meal lunchtime and something light for tea, finish eating early if you can, by 5 or 6pm ideally. Take a couple of Imodium before bed and then wean them down to one, this should stop some of the night time activity. Buy a squirty portable bidet bottle, amazon does them, you fill with warm water and squirt it at your bum while you sit on the loo. then pat dry. Sudocreme works well as a barrier cream. My local hospital had a LARS incontinence clinic run by nurses who could prescribe extras like the bulking agents which make your faeces bulkier and more likely to be passed in less visits. Increase the capacity of your bowel by trying to hold on to it in the day for a minute or two after you get the urge, this stretches the new bit of bowel, the more it holds, the less often you need to go and the more control you get. Have you been doing the exercises? Ideally they should have started before the reversal op. Clench your anal sphincter and hold for ten seconds and relax, then repeat ten times, do this a few times a day, it helps
Finally be assured, it DOES get better, hang on in there, I bitterly regretted my reversal at first but now I am so glad that I got it done.
Thanks for this. I am hardly eating at all. Most days all I'll have is a plate of soup, a couple of poached eggs or a baked potato. This happens nightly even if I have eaten nothing the entire day except toast and banana.
As I mentioned, the rash is much reduced. I am still applying trinovate, sudocreme and barrier creme. The real pain is however in the anus itself as the faeces pass through. The pain remains until the anus is thoroughly cleaned. I do this by stepping into the shower and directing the shower spray up my bum. After drying I spray skin cleanser onto a dry wipe and rub onto the anus. I think you will appreciate that this repeated procedure is really exhausting.
Sometimes I do wonder if I have made the right decision to get the reversal. However, I am an optimist and am, so far, still living in hope (just!!)
Thanks again for your advice
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