First appointment with Oncologist

FormerMember
FormerMember
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Had my first oncology appointment yesterday.  It had been changed from an out-patients appointment to a video conference call, but due to tech issues finally had to be a telephone consult.  Dr/Consultant seems very pleasant and nice (always a bonus!)

Two option are available: Chemo or Chemo & Radiotherapy.  Then surgery on Liver (one lesion has been found, I don't know the size), followed by surgery on my primary tumor in rectum.  Nothing was mentioned about the possibility of it having spread to my lungs, which they initially thought it could have.

There is going to be a team meeting on Monday evening to discuss my case further & my key worker will let me know the outcome on Tuesday.

From what I understand:


Option ONE: 3 or 4 cycles of chemo (tablet form, wasn't informed of drug name, or more likely was but have forgotten what it is). Then CT/MRI scans, followed by the two surgeries, followed again by CT/MRI.  (I've put CT/MRI after initial chemo as well as surgery, as can't remember if it was this or just scans after chemo or just scans after surgeries).  A question to ask key my worker on Tues.

Option TWO: Chemo & Radiotherapy, followed by CT scan.  5 weeks on chemo tabs & daily radiotherapy, assuming also for 5 weeks (another question to ask key worker about), again followed by the two surgeries.  

Treatment to start in about 3 weeks time.  Hoping I'm going to have recovered enough from my colostomy by then, which was performed on 1st April.

No doubt will find out more in-depth details on Tuesday and the final 'plan' when speak to my key worker.

Feeling positive, hoping not to get too many side effects, but know some can be treated with other drugs.

Roll on 3 weeks!

Keep safe & well folks

Mark

:-)

  • Hi and a warm welcome to the board from me. I shall let share her expertise on your liver treatment.

    I had 5 weeks of chemoradiotherapy before my op - the chemo is in tablet form called capecitabine. It’s used in quite a low doseage along with the radiotherapy and I think it helps enhance the effects of the radiotherapy which is given to potentially zap the tumour and shrink it in size. The smaller the tumour the better as it enables the surgeon to get clear margins ie. remove the tumour and some of the surrounding area then it is sent off for testing. I found to be very doable and it shrank my tumour by 75% though I suppose the issue at the current time is the increased risk to you of attending a hospital every day as the chemo will lower your immune system. 

    Glad to hear that you’re feeling positive - I know some people hate that expression but my nurse always thought that it helped. Stay away from google - you can ask anything you want on here - there is nothing too daft or embarrassing!

    Lastly are you managing with your Colostomy ok? There is a separate board for Stoma Support run by the master of stomas Ian aka who will be more than happy to help you with any issues

    https://community.macmillan.org.uk/cancer_experiences/ileostomy_and_colostomy_discussions/

    Please let let us know how you get on

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember in reply to Kareno62

    Hi Karen

    Thanks for the warm welcome :-)

    Not sure about the size of lesion on my Liver, but I know the one in my rectum is considered to be 'large'.  T4 N2b MX.  Slightly concerned about the chemo lowering my immune system as I also have HIV (diagnosed 30 years ago in 1990 - but is well managed with antiretroviral medications).  CD4 count at my last test was 197.  My HIV consultant is aware of my cancer status and I've made sure that my oncologist will liase very closely with my HIV consultant as there may be a need to change HIV meds whilst on chemo.  HIV drugs likely to take 3 or 4 weeks to completely get out of my system, should I need to change onto others.

    I've had to have a positive attitude for the last 30 years, so it's kind of just 'in-built' now.

    Managing great so far with my Colostomy (been a few hiccups here and there, but not that many).  Ian "The BRODACH', has along with others been great!  I've already posted several times on the stoma group :-)

    Thanks for the info and for your account of how you got on.

    Wishing you all the best for now and in the future.

    Keep safe & well

    Mark

    :-)

  • Hi ,

    With regards to your liver it comes down to location in the liver and it sounds from what your saying that you are currently operable . Good news on that front . They do normally leave around six weeks from surgery to Chemo or the reverse way so it sounds about right .

    My mum’s tumour was right side ascending so she did not have radiotherapy. 
    She did have the tablet chemo to take along with her infusion and she got into a routine with them . It was amazing how quickly she made the adjustments.

    Glad you liked your oncologist. Always a bonus .

    Have a good day .

    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to court

    Cheers for that Court - Thanks

    Yup always a big bonus when you get on well with the 'big wigs' :-)

    Have a great day too

    Regards to both you and your mum

    Keep safe & well

    Mark

    :-)