Hi All
I had my operation last Thursday as expected because the tumor hadn't shrunk with the chemoradiation he had to go on further so he had to change from keyhole to open & give me a temporary bag . I was in recovery for 11 hours due to low blood pressure & the in intensive care for 4 days
Im now in the ward and have been sitting in a chair and small walks. I've found the stoma quite traumatic I'm very squeamish and when i saw it i nearly passed out !but I know I will have to get used to it
I've been finding myself very tearful is this normal ?
Well that's all for now
Love Peacock62
Hi Peacock
so glad you are in a ward now you must be improving, but sorry you are tearful, I can only imagine as I have no experience but I wouldn’t think no matter how much we think we are prepared for what it looks like the reality hits home, and also in the mix is the trauma to the body and effects of anesthetic as well etc.
you are doing great, one day at a time and you will get there, take it easy and so glad you posted.
love to you
process x
Delighted to hear you are safely through surgery and back on the ward . I can only imagine what your body has been through and a few tears are well justified.
I am going to tag a few people in who could give more insight to the stoma , , Strongsami . I know they have some experience and would be happy to help out . Or anyone else out there in the know .
One day at a time ,
Court
Helpline Number 0808 808 0000
Hello Peacock62 lovely!
So so so good to hear from you. I'm sorry the first few days sound quite rough but great to hear you're back on the ward. As for being squeamish - totally and utterly normal the first impressions but you will get used to it. (do you remember my husband DID actually faint and the nurses said he wasn't the first...) You WILL get used to it with time, every time you see him or her you will become more accustomed to it. Also it becomes more attractive as time goes on ;)
So as for teary, again I think this is normal. I went from euphoria immediately afterwards (drug induced I think lol) to feeling very down (just to make you feel better, this passed after a few days) but I remember reading that it is actually quite normal - even on a chemical level - to feel down after a surgical procedure. So I know it's another big old cliche but take one day at a time. Make a note of your improvements (walking those few meters more, having more to eat, getting in and out of bed easier, starting to get to grips with your stoma). It's tough, that's for sure, but you are absolutely capable of doing this and you will.
Have you started eating? What delicious treats have they served up for you?! ;)
Sending you gentle healing hugs
xxx
Hi, I can only echo the previous comments and to assure you it does get better, look on your stoma as part of the cure not the cause of your illness.
Bursting into tears for no reason is very common after any operation and between you and I, I still do it and my op was a number of years ago and I'm quite elderly and that can be embarrassing to say the least.
You have something to look forward to your stoma may be short lived and reversed shortly but in the meantime look forward to getting home and starting to lead a normal life. Having a stoma is no deterrent to living life to the fullest if you were able to do something in the past there is absolutely no reason for not doing them now in fact you may find that you can do more.
When you are ready can I invite you to join our Ileostomy, colostomy and stoma support (Group) group where we have lots of tips about Living with a Stoma (and we do!). We can answer all sorts of questions, to be honest anything you need to know just ask me about diet, clothing, pouches and products to use. I can also give you advice and help solve any little problems you may come across and I'm online 7 days a week and nothing will be too much trouble in helping you, just give a shout out to The BODACH and be there.
As a matter of interest were you forewarned that you might end up with a stoma and if so what were you told about it by anyone or was it only decided during the course of the operation.
Hope you get out home soon and your stoma management becomes second nature and you enjoy Life Living with a stoma
Keep in touch and I look forward to seeing you over in the stoma support group
Ian
Hi Peacock62 and well done on getting rid of your tumour. Your emotions will be all over the place and you’re probably tired and not sleeping well. Take little steps - literally - and you’ll soon be home in your own bed. Your stoma will shrink over the next few weeks and if you change onto covered bags rather than clear ones then you’ll only have to see it when changing but you will get used to it and dealing with it will just become part of your daily routine.
It’s lovely to hear that you’re starting to recover so take it slowly and give yourself a big (gentle) ‘well-done me’ pat on the back
Take care
Karen x
Hi process
Thank your for your thoughts as usuall you always say the right thing just when I need it. I think the realisation of it all has hit as I've been on auto pilot these last few months as if nothing was wrong with me although it was always there with me
Love to you and hubby
Peacock62 xxx
Thank you @court for your kind reply yes this time last week i was able to walk about and now i have to ask someone to take me to the toilet which is hard I know I mustn't be too hard on myself i think i'm going to have a cry whenever I like and let it all out for once in my life
Love Peacock62 xxx
Hi @strongsami
I hope you are continuing to do well. Yes I do remember your husband nearly fainting when he saw it now I can see why I just wasn't prepared for what I saw . I thought it would be a very small opening . I know I have to get used to used and yes I will in time. Today I saw all the staples from the open surgery that gave me another meltdown. I know it's irrational but frightened to sneeze in casehey all pop open .
I haven't been able to eat much yet as it hurts the stomach. The food here is not great the soup is always lukewarm .but the nursing care is brilliant . I had a jelly with milk in it which was bizarre but it was like a rubber ball lol if I had the energy I could have bounced it up the ward
Lots of love
Peacock62 xxx
Hi Ian
Thank you for your reply I am trying to look at the stoma as a life saver I know it had to be done but the other half of me finds it really difficult.
Yes the surgeon did tell me I might have to have a temporary stoma
I will definitely join the group when I feel up to it as I already have problems with the skin
Thank you your replies are always so detailed and informative
Love Peacock62 xxx
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