Hi I just want to update on my husband.
To recap he was diagnosed March following screening, he had no symptoms prior to diagnosis, was fit , active and healthy he started chemo radiotherapy 5 weeks beg of May to June, 10 weeks wait then sigmoidoscopy and scans, we were told after scan possibly complete response and were waiting for meeting to be given all news, when we didn't get an appointment I chased and then things went pear shaped. We were hoping for good news on biopsies etc but then...
We were told he needed pet scan, and then he got appointment through post to see lung consultant but we didn't no why or who made the appointment. we waited long time for PET scan. At lung consultant appointment, he told him he had enlarged lymph glands in the centre of chest so he wanted to do EBUS....which is biopsies of those glands by tube into windpipe and needle biopsies taken.
The lung consultant was lovely, but we had not been informed prior to seeing him why we were given an appointment. It all added to the stress.
We waited a few weeks for PET scan and then EBUS took place few days later, then wait for results.
On Friday we met the lung consultant again and the good news it is not cancer....Phew ...but a condition called sarcoid like reaction....the consultant was lovely, the condition lights up on the PET scan like cancer would but the biopsies he took in anticipation proved it wasn't.
He says my hubby has been a challenge, but he likes a challenge, he had also checked scans and is not concerned about lung nodules....that were also present.
So as you can imagine, a huge relief to us all....he told us he hopes never to see us again but he will be keeping an eye on his future scans.....so now we can celebrate this victory.....yeah.....
We now have three whole weeks of no appointments before next lot of bowel tests, as the first three months of Watch wait will have passed then, .....starting with another sigmoidoscopy....
I posted the update to maybe help others as I had been very worried by the way things were going, especially has my husband only managed 12 days of chemo and was taken off because of toxicity, so strange things happen....
It feels like we have not been able to celebrate the complete response. So we intend to enjoy these full three weeks of finally no appointments and hope.....just hope :x::x::x:
