Post op pain

Hi Missymoo2. Great to hear that the op is now behind you but not so good to hear that you’re struggling a bit now. Are you able to pop up to your doctors and let one of the practice nurses have a look at your incision just to make sure it’s not an infection starting? 

I’ve attached a link to a previous post about numbness in the leg and thigh after surgery which might hopefully help? If not perhaps you could give your colorectal support nurse a ringto run it past her?

https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer/f/bowel-colon-rectum-cancer-forum/182619/thigh-numbness-after-operation?Page=0#1351148

Take care

Karen x

Hi Karen thank you for the info and link. I have had a chat with the specialist nurse and she's going to email my surgeon and get back to me, so am hoping for a solution. I have a meeting with the oncologist on Monday re the start of chemo and am very apprehensive so any tips from anyone would be great. Missy

Hi again Missymoo2. Glad you’ve managed to speak to the nurse and hopefully things will start to settle down soon. Next stop chemo.

Chemo affects everybody differently and your oncologist will no doubt warn you about all the side effects of which there are quite a few HOWEVER you may get a lot or you may get very few. You will be given lots of information and the nurses will check with you before each session about any side effects you may be experiencing and will be able to give you pills and potions to deal with it. 

I had capox/xelox which is oxaliplatin in iv form and capecitabine in tablet form. I did a post a few months ago about some of the things to expect if you want to have a quick read of it? There’s a guy on the Bowel Cancer UK Board who doesn’t like people referring to it as ‘poxy oxi’ and says we should view chemo as ‘our friend’ - maybe a bit extreme but it’s worth putting up with it for a few months to kick any lingering lymph nodes into touch and add the belt and braces to the op.

Let us know how your appointment goes and feel free to ask any questions - there’s a lot of people been through it/going through it who will be happy to share advice

https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer/f/bowel-colon-rectum-cancer-forum/178919/starting-oxaliplatin-and-capecitibine-chemo-next-week

Take care

Karen x

Hi I started my Capox chemotherapy on 5th Nov and on Friday found myself in hospital with nausea, vomiting and feeling breathless. My bloods show a rise in troponin which was quite significant. I have had a heart echo and a change of anti nausea medication, which has made me feel a lot better. No more Capecitabine tabs since Fri. Apparently now I might have to have a different chemo drug, am waiting to see what happens. Has anybody else had this happen to them, if so have they any advice. Feel worried that first chemo seems to have caused problems and it was only a few days. Thank you