Lonsurf as a 3rd line treatment.

FormerMember over 5 years ago

1 reply
124 subscribers
1346 views

Hi ,

I'm new to this group, but have but have been battling with colon cancer since August 2015. Last year after a routine scan they found that the cancer had spread and it was now in both lungs . I was told it was inoperable, as you can imagine both me and my family were devastated and still are. I've had 2 lots of chemo and radiotherapy , none have worked successfully. I'm now at the stage of being given Lonsurf as a third line treatment .

My question is has anyone else been offered this drug , and what is it like.? As an effective treatment to hold the cancer at bay.

Sorry for such a long winded explanation , but its the only way i can explain myself .

court over 5 years ago

I just want to welcome you to the forum . I am sorry to hear that your previous treatment has not had the desired effect .

Strangely enough another poster has just asked the same question . If you use the search function you can pull up previous threads . Some people do find it doable and do seem to get benefit from it . Purely from observation I think some people find the side effects rough but I think you would also have to factor in their general health before starting that treatment . You will be able to read of one recent poster whose husband has had good results and finds it doable . There seems to be a subset of patients that do very well with it and keeps things stable .

Just wondered if you have looked into Immunotherapy . Some patients seem to be able to access it though it may be through clinical trial .

Glad you joined us and hope we can be of some help to you .

take care ,

Court

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