Chemo come down days

Hi

I haven't had chemo and I'm not a member of this group but I noticed that your post had gone unanswered. This is probably because as this is a very busy group your post has fallen off the first page before someone with the right experience has had chance to see it and reply. By replying to you it will bump it back to the top of the page where it has a chance of being seen again.

x

court

Sorry I am not much use to you on this one . My mum had Xeloda and was wiped out by it . She used buscopan for colic type pains and slept a lot of it off .

Glad to hear he is doing so well overall . 

Sorry I missed this post . I have been busy with my mother’s paper work ! Been a bit onerous but we have made progress .

take care ,

Court 

Hi Lena

I think chemo is tough both mentally and physically. It’s usually over quite a length of time and comes off the back of a big operation. Added to that your boyfriend had the additional problems post op so it’s been a really rough 12 months. During my chemo I did start to feel a bit ‘when is it all going to end, Will I ever feel normal again?’ and if he’s got any steroids thrown in with the chemo there is usually a come down after that too.

All you can do is anticipate the down days and accept them. Realise that those days are going to be rubbishy and if he wants to lie on the settee all day watching box sets and eating chocolate then that’s fine. Obviously a walk in the fresh air with a healthy meal to follow would be better but sometimes you’ve just got to break the rules a bit until you’re on a better day. Keep ticking the sessions off and make sure you’re looking after yourself too Lena. Have you got a date for the scan yet?

Take care

Karen x

Hi Karen. 

Yes he definitely is low after the 3 days of steroids, they stop him from sleeping too even with a sleeping tablet. 

He was due to have a scan in September, but because a few weeks back he was in A&e with a bowel blockage, they had to do a ct scan then together with an x ray to check.  They said the mets on the liver had shrunk already after just 3 rounds of the chemo. So that’s good.  So anyway they will now delay his ct scan till October November time as they don’t want to scan when he’s just had one.  He had a month off the chemo now as we are due to go on holiday in a couple of weeks.  Then chemo will continue when we’re back. 

lena x

Hi I saw your post a while ago, sorry for not answering sooner. Everything your boyfriend is experiencing is exactly how I felt a few years ago. I had FolFox fortnightly with the 5FU pump. Steroids kept me awake, felt yucky, depressed, tired, problems with bowels etc. Everything you describe,  And I agree with the others...just go with it, tell him to accept feeing rough but remind him every treatment is one ticked off the list. Annoyingly I just began to feel better a couple of days before the next dose was due! It's tough watching someone you care about feeling so ill but take care of yourself too. 

Keep posting here for support, it's a great place to let off steam and get information. 

Thank you Diane for your reply.  

You are right, just as he feels better it’s chemo time again. We have to keep telling ourselves that chemo is our friend helping us to destroy this cancer or at least keep it from getting bigger anyway as incurable at this stage so it’s more treatment type. But as we’ve learnt, you never know, things change all the time.  Fingers crossed we continue to kick cancers butt. 

Lena x