Does anyone know much about this? Have been told today that the tumour cannot be removed due to it being attached to a main vein. The tumour had shrunk from 10cms to 3cms but by the time it got to the scan stage before the op it had grown to 7cms. Now bring told unable to operate and to continue with chemo until physically unable to.
Hi ,
That was a lot of shrinkage you had . My mum had shrinkage every time she had chemo so it could be anticipated that it would shrink again . Is it your Bowel tumour you are referring to ? Can you give any idea of its location ?
If I was you I would most certainly be seeking a second opinion . What one surgeon can not do does not necessarily mean another is not able to try . I think getting to sit down with a different surgeon and talk through all your options is very important. You are clearly chemo responsive so it’s worth looking into .
We have a helpline here 0808 808 0000 they may be able to talk this through with you . We certainly sought different opinions for my mum and it changed her treatment .
Glad you joined us and please keep asking questions ,
Court
Helpline Number 0808 808 0000
Thank you for replying to me. What started as having the Colon removed to prevent cancer has led to stage 4 stomach cancer... One in a million chance apparently. Today have found out that it has now spread to the bowel and therefore radiotherapy is not an option?! I was thinking about getting a second option... Thank you for the advice and the phone number x
I wish you every success . My mum has become operable twice with chemo alone so I do hope this is only a step in your treatment which may lead to different options .
Take care ,
Court
Helpline Number 0808 808 0000
Hi GemMcc1984. I was told today that my tumour had responded very well to the treatment apart from a bit of the tumour that is close to the pelvic wall. The surgeons here in Poole have said they won't operate so my scans have been sent to Southampton where their surgeons have more experience with this sort of thing.
It would be worth getting a second opinion because there may be surgeons with more experience of this and they may be prepared to operate.
Good luck and I hope you get some positive news.
Rita
Thank you for your response rita. Glad to hear you are responding well to the treatment and keeping everything crossed for you that the surgeons in Southampton will get it all sorted out for you. Will be seeing someone at the university hospital in London next week so fingers crossed.
Take care and good luck with everything xx
Vascular surgery is very specialised, while I was in hospital there was a woman waiting for a bed at King's in London for appraisal of a vascular tumour on her vena cava at the time they hadn't even risked a biopsy.
D
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