Obstruction

Hi ,

Sorry to hear about your husband , that sounds very difficult for him to endure and you to watch . 

I have not witnessed that exact situation but many other distressing ones and realised that the staff have encountered so many that there are aspects they are managing that were not even crossing my mind . It sounds as though they are getting him ready for surgery , dealing with this issue now saves post op complications / infections etc and sets him up better for the surgical procedure . 

They will have a good plan going forward for him but it’s horrible to watch them vulnerable and dependent on tubes and medical equipment , being powerless to do anything about it .

All I can assure you it slowly gets better and the plan unfolds . After surgery they need time to recover but two weeks brings big changes and you start to trust the process . 

It is really tough right now but it’s going to improve considerably .

Hold on tight .

Macmillan also has a helpline and they would be happy to chat anything through with you .

0808 808 0000,

Take care,

Court

Welcome to the bowel group and I'm sorry you have had to come to us with the news of your husband

Personally I've not suffered from this and I feel for him and of course yourself. Everyone concentrates on the patient but very few people realise that the nearest and dearest are also suffering but in a different way as you're left to hold everything together and put on a brave face and I'm not surprised you're devastated.

You can only look on the bright side, this feeling of everything going backwards will hopefully soon be a thing of the past once the surgery is over and done with and you can start to rebuild your life.

Also remember as our door is always open you can come along for a chat or to let of steam or even just to rant and rave this is the place to do it and no one will judge you but we will always be here to support, advise and help you at any time you need us. 

Have you considered joing our Carers only forum group a place reserved for those who care and need a safe haven to go to when things are at a low ebb.

Ian

By clicking on the green text above will open up a new page for you.

Oh court 

you have nailed it in what you have said. It’s been very very quick just a couple of months from tummy trouble to this .i still can t take it in and feel like I have run into a brick wall x it’s been made more difficult as the obstruction is on some junction so initial feedback was pancreatic but now they are more of a mind it is colon . I can t seem to find anything similar within the forum . We are both terrified at the large surgical op but options are few . I wish I had a magic wand .

thank you for replying x

Hi my girl. I had a blockage  and my GP thought it was pancreatitis cancer had more test and they found the blockage  was in the colon  January this year  .Had surgery in the March before  surgery could only have fluids soup etc or soft food . once I had the surgery you start feel much better takes about six weeks to get over the surgery.your  husband may need more treatment they will let you know once they have the test results  back after surgery good luck with everything Sharon you 

Thanks Sharon 

my hubby has been very poorly lost a lot of weight 

next week scheduled for surgery , just feel so frightened and I know he is too. Don t know how to raise his spirits at all because I feel rock bottom . This has come as such a shock to us both . However it’s great to hear you are on the mend x 

Hi My girl,

Sorry to hear; I was diagnosed because of the obstruction and also ended up with a nasal tube (you can read my story by clicking on my name). In my case, I was so distended that if they performed a laparotomy to remove the tumour, they would not have been able to close the wound. So I ended up with a temporary colostomy to relieve pressure on my bowels before some recovery time and the big surgery five weeks later to remove the tumour.

In all of this, the nasal tube was probably the worst part of the entire experience! But don't feel to negative about the tube; it looks and feels awful, but it is only one small part in getting your hubby to the surgery.

All the best, and let us know how he gets on.

Yolande

Thanks Yolande hope you are feeling better x

Hi ,

I am doing very well, thanks for asking. After my first surgery last year (the temporary colostomy) the relief was almost immediate, even though it would be five more weeks before the cancer itself was removed. I was hungry and wanting food almost immediately after the operation! But the hospital introduces food slowly, so it was liquids the first day (I had ice cream and diluted apple juice; after not being able to enjoy food for weeks it was wonderful!). 

A year on and it almost feels like it was just a bad dream. I was fortunate in that the cancer was picked up before it had spread, so I did not need any further treatment. So I had a colonoscopy in May which was clear, and a CT scan next week which (fingers crossed) will confirm that I am now one year cancer free.

All the best for you and your hubby!

Yolande

Getting more and more nervous it seems the tumor is located at some junction all very complicated to me .

all vague first pancreatic now they saying they are more of a mind it’s a colon cancer ? 

I miss my husband so much he has been in hospital now almost three weeks for build up for surgery 

I had an obstruction last year and had the nasal tube. Finally after a week in hospital I had surgery. A few days after surgery I threw up a whole lot of bile, it was disgusting and the worst that I have ever thrown up. I did feel heaps better after.

Unfortunetly my cancer has come back and just about to have more chemo again.

Carol