Bowel cancer chemotherapy

I have posted on here in the past about chemotherapy, particularly about 5FU dosing, which you are about to receive.

You may find my blog an interesting read. There you will be able to read what I have found out, what we had to do and what I am trying to do to change things for the better.

I’m not done trying yet. Not by a long way.

https://exposingoncology.blogspot.com

Regards

Hi 

I haven’t got any personal experience of folfox but there have been posts about it recently if you want to type it into the search box at the top of the page.

The ‘ox’ part of it is oxaliplatin which is used in a lot of Bowel cancer treatment and tends to be the one with the most side effects - you may get some, you may get none but forewarned is forearmed so you might want to have a quick read of the reply that I did to Maggiel a few months ago.

https://community.macmillan.org.uk/cancer_types/bowel-colon-rectum-cancer/f/bowel-colon-rectum-cancer-forum/178919/starting-oxaliplatin-and-capecitibine-chemo-next-week

Chemo is not pleasant but it is doable and the nurses will keep a close eye on you and help with any side effects

Hope it goes well for you 

Take care

Karen x

Hello Paul.

my boyfriend started this same chemo last Wednesday. He’s having it fortnightly for 8 weeks.  We did not quite know what to expect afterwards as you hear so many horror stories about chemo and it’s side effects.  He was surprisingly well afterwards. For the first three days he had various tablets to take such as anti sickness and steroids to keep his energy up as still working whilst on the treatment.  Now the tablets have stopped he is feeling very tired and a bit yucky.  We tried to go for a walk yesterday and we did not get very far as it really took it out of him.  Prior to this we’ve been going on 2-4 mile walks. So it is effecting him in that way.  He will be having his second dose next week, whether he will come away the same as this time I don’t know, will have to wait and see.

Lena x 

Thanks Lena. Sounds same as most people - not so bad at first and then down hill. Good luck.

Thanks Karen.

Grateful for the valuable information. 

Bless you.

Thank you Northwesterly.

It's great to read about others going through it.

Has to be done!

Best of luck to you.

And to you too Paul. My blog isn’t quite up to date, so check back now and again. I will be having a meeting with The Christie on the subject in August, NICE have suggested I ask them to look into it and the NIHR say perhaps it’s time they looked into TDM again in the light of the new evidence I highlighted to them. Perhaps me poking at them all might just pay off in the end!

This is brilliant news . It’s paying off . Just back my holidays but I will send you a PM .

Court