First chemo yesterday

FormerMember over 5 years ago

2 replies
123 subscribers
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Hi all. Hope you are all enjoying the sun the best you can. Yesterday was the first day of chemo for my boyfriend that got diagnosed with a few tiny Mets on the liver following bowel cancer last September. He’s having irino mdg fortnightly for the next 8 weeks. He appears to have taken it well yesterday. He’s connected to a pump for 46 hours following the treatment in hospital which pumps more chemo into him which he’ll have disconnected tomorrow. Got tablets to take for next three days, anti sickness and steroids to keep his energy up. He went to work this morning, just on part time hours for now, came home and he’s sound asleep on the sofa. He did not sleep at all during the night, I’m assuming this could be from the steroids. We were told in hospital not to take them after 2pm as they would interfere with your sleep. He had them in hospital yesterday probably about half 1 but they have obviously affected his sleep. Has anyone else had this problem? And has anyone else been on this treatment?

lena x

FormerMember over 5 years ago

Hi Lena

My hubby has been on various chemo treatments for over 3 years bowel cancer, mets in liver (now gone) and lungs (still there) - mostly the iv with 46 hour bottle to carry around. He also has loads of tablets - anti-sickness, steroids, constipation, diarrhea ( a fine line to tread between those two!) etc. He hates carrying the bottle around - got accused of taking a can of coke in the Co-op once as they could see it in his pocket - as he can't wear decent jeans as he needs a pocket big enough to fit it in. Also hates not being able to shower whilst 'attached'

The steroids do make him bounce off the walls at night and eat anything & everything in sight. He did decorate the porch about 4 am one morning so not all bad He does get very tired but has learned to give in & have a sleep if he needs it.

Good luck with it all - it really does try your patience & sometimes I think it seems harder for the partner than the sufferer as they get all the care and attention & we get all the worry. Hang on in there and do keep us posted - this is great place to find folk going through exactly what you are - there is nothing you cannot say on here, which is not often the case with those you love

All the best

Zoe

FormerMember over 5 years ago in reply to FormerMember

Hi Zoe.

Thank you for replying. Always interested to hear from others that are going through it as well as you are the only people that really know what effect this whole thing has on us. Friends and family try their very hardest.This site has been amazing since the start of this unimaginable journey came across us.

Yes the pump is a bit of a nuisance, unable to shower especially as it’s warm outside and a bit of a struggle knowing how to position it at bedtime. At least it’s only in for 46 hours and not continuously the whole 8 weeks.

You are right, it is tough on us too, but we are a great support to eachother.

hoping he gets some sleep tonight.

Lena x