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FormerMember
FormerMember
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Hi everyone , so now my daughter is safely through her surgery and coming home tomorrow (yay!!) I’m starting to worry about the next step . 

The surgeon told us that he saw no sign of residual disease and thought she wouldn’t need further treatment but obviously we have to wait for results from lab . 

Im wondering if the surgeon can tell just by looking if the lymph nodes are affected ? Or if there’s any cancer in the surrounding tissue or blood vessels ? 

Thanks in advance 

  • Hi . Great news about Laura coming home - she’ll improve leaps and bounds once she’s back in her own bed. I had been told from my scans that they suspected there were a couple of lymph nodes involved and they were right - I had 2/17 affected. Unfortunately the only way to be absolutely sure is from the results of the histology report which can take a couple of weeks to come through.

    More waiting I’m afraid and hopefully the results will be clear. If not, and Laura does need chemo, then I’m sure she’ll face it with the same positive attitude and we’ll be here to offer advice and support

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember in reply to Kareno62

    Hi Karen , her ct was clear so I guess it’s just more waiting , the absolute worst part of this whole thing 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi. So pleased to hear your daughter is recovering so well following her surgery. 

    My story is slightly different to yours.  My boyfriends bowel cancer was discovered due to severe pain caused by a bowel obstruction, which the hospital at first were adamant that it was appendicitis, as they fail to want to recognise cancer in the young. We had to fight for a CT scan.  Anyway following his surgery his surgeon fed back to me.  They see things everyday, they know what is what, the biopsy just confirms it. That’s my opinion anyway, other people may differ. Our surgeon told me it was cancer just from looking at it and mentioned some lymph nodes looked diseased too. I did not appreciate the honesty at the time, thinking how can he tell me this utterly devastating news without the biopsy confirming it.  He was right through, the obstruction was cancerous and 2 out of 18 lymph nodes were affected. 

    I hope your daughter continues to recover well and you get the news you are waiting for very soon. 

  • Great news that she's coming home, she'll be able to get some real rest.  There is no way that visuals alone can judge lymph nodes, I was prepared for the worst on a ward round when the surgeon told me 'mine looked a bit thick' as she threw the. ' in tbe bucket,' her words not mine.  Histology showed they were in fact clear.  

    The next few days will see your daughter sleep, sleep a great deal.  I'm sure the mental exertions you've been through have also left their mark, it's the old adage of 'who cares for the carers?'  So be prepared for 'a crash' yourself.  

    Here's wishing you both well.  If you're ever in Liverpool please let me know and I'll make sure we meet up.

    mikewhitehouse@hotmail.co.uk

  • FormerMember
    FormerMember in reply to Stwhitm

    Hi mike her consultant was around this after noon and said he would be very surprised if further treatment was needed but there was no way to predict the glands or microscopic cells so we  have to wait for results . If she does need it then it won’t be very aggressive . 

    She seems more worried about the stoma reversal than anything now , some brainless idiot  told her it was worse than the original surgery 

    she’ll be home tomorrow anyway so that’s the main thing 

  • Hi . That’s rubbish! I’ve had mine reversed and the surgeon described it as a ‘nice little op to fit in inamongst the biggies’. I think it took about 1.5-2 hours and they basically snip round the stoma, drop the bowel back in and stitch the small wound back up. I was up and fully dressed the next day and looking for something to do. There was no epidural either, just a general anaesthetic.

    Please tell her not to worry

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember in reply to Kareno62

    I will and I know she asked the consultant this afternoon and he told her the same . I could kill the person who told her that and upset her  , she’s was doing so well , talk about thoughtless !