Low Rectal Cancer Diagnosis - newbie on here

Hi Hannah/ Annie

I have chased up the results from the MRI and CT scans yesterday with the Oncology Department at Saint James. Received a call this lunchtime to say they have come back all clear. I also received a copy of a letter sent from Professor Myint to the Oncologist at Saint James to say that after his examination he is saying that I have had a complete clinical response. So he is saying now to put me on a watch and wait scenario.

So my next situation is to have an endoscopy at the back end of November and a fresh MRI scan in December. Then in March an MRI and CT Scan and see Professor Myint in March too.

So it’s good news and they are keeping a close eye on me.

Kind Regards to you all that’s following my journey 

KevH xxx

Kev that's absolutely fantastic I am so pleased for you! Thank you for sharing your journey with us too! It means so much to those of is who are on the same road in one way or another.

Best wishes

Hannah

Thanks Hannah I am so glad I persued Papillon and if it hadn’t of been for here I wouldn’t have known about it.

So we will see what happens from here but I can at least look forward to a better quality of life than the Gold Standrd. But if it does come back I have that to fall back on. In the meantime I’ll be thinking positive thoughts and know that they are keeping a close eye on me.

Keep us posted on your Mums journey and I’ll be thinking about you both.

Kind Regards 

KevH xxx

Kev ! 

That is such great news and totally validates the evening we witnessed the other week.. so, so pleased for you .. onwards Kev .. let's hope this becomes the gold standard in the future for at least low tumours.. as it works for the right cases  ! Thanks for all your support to others following your journey Xxx Annie xxx 

Seconding what AnnieMC50 just said.

Hi Annie,

Thanks for your support and the support you give to others too. I think someone once said we are all in this together lol

Keep is posted on your progress and I do hope and pray that your outcome is as good as mine.

Kind Regards 

KevH xxx

Well done Kev you have had a great response.

take care,

Court 

Thanks Court now on to watch and wait scenario now 

Kind Regards 

KevH

Hi

I've been watching everyone's journey with interest over the last couple of months, but haven't posted to date, not sure why. I'm on a very similar journey which started over 5 months ago.  I was diagnosed with very very low rectal cancer in April, T3,N0,M0.  (so low you can see it poking out).  I am 42 and was diagnosed 6 months after having my having my 4th child (9,8,6 and almost 1 now).  

My treatment started in May with 4 rounds of FOLFOX over 8 weeks -  my Oncologist said it was to target any stray micro cancer cells that may be floating around my body.  I then did ChemoRadiation for the 28 days.  I got on well with it, apart from the last week and 10 days after, where the burns and stinging were quite bad. 

Having come across your posts, Kev, and Catherine, I was eager to see if I might be a candidate for Papillon too, should I get enough shrinkage. I emailed Professor Mynts team, to see whether they accept overseas patients, should I become a suitable candidate (I live in Ireland).  They said they do, provided I am suitable.

I mentioned this potential option to my consultant radiologist, during one of my radiation days, but he wasn't impressed...Gold standard all the way.. said I needed to talk to my surgeon, which I duly did.

My surgeon, who is not very enthusiastic about the idea, said he would support me. He also provided me with more details about my tumour ( they have a tendency to drip feed u the info).   My tumour was 7.8cm, I had originally been told 5cm, and that it was a mucinous carcinoma which don't respond to ChemoRT as well as non-mucinous tumours!.

I'm now 6 weeks post ChemoRT and have my rescan/scope date scheduled in week 9. I should find out my results in early Nov.  I'm hoping and praying that the treatment works well enough and shrinks (I feel its shrunk slightly internally, but its still poking out)

Just wondering if anybody else's tumour has been in the mucinous category.. apparently its only 1 in every 10 tumours, and what % shrinkage did you get, if any.?

Best of luck to everyone, and I'm hoping everyone on their journey gets good news.

Best Wishes

Cat. 

Best of luck .