My husband's metastatic bowel cancer

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My 70 year old husband was diagnosed with bowel cancer at Easter and after all the scans, it turned out to be metastatic, having spread to his liver and lungs. 

He had a stoma fitted in May, had radiotherapy in June, and has just finished his 4th cycle of CAPOX chemo.

We spoke to the oncologist this morning.

My husband's latest CT scan shows no improvement in liver and lungs, so they want to change tack next Tuesday. His main tumour has shrunk.

They now want to put in a PIC line and change chemo to Irenotican and another drug to stop the bowel tumour from growing again. They are also referring him to our local hospice for support. We are incredibly lucky to have a hospice in our little Devon town. 

My husband doesn't want to discuss it today. He's processing. He hasn't slept in a week.

Does anybody have any idea how I can best support my husband and what we might expect to deal with going forward.

I'm devastated but having to keep lid on my emotions. I'm physically impaired myself (fibromyalgia, RA, liver issues and am on list for yet another knee replacement) but having to do everything around the house, as well as driving etc.  The few family we have live at least 1.5 hours away. Am overwhelmed, have lots questions....

Help!

  • Hi SammiC,

    You've had a busy time. 

    It sounds as if the radio has had a positive effect on the main tumour. 

    My husband had a bowel cancer on 1st diagnosis. Capox were the main treatment drugs followed by radio and surgery. 

    His mets have gone from bowel via lymph to the lung causing a collapse. 

    The PICC line is a really good thing to have fitted. It makes blood tests and treatment delivery so much easier and kinder to the body. 

    For the lung aspect my husband was started on FOLFIRI  with Cetuximab. 

    Very, very effective on the tumour. Except he was allergic. He's in a 6% group for reactions. So now taking Cetuximab only on a reduced dose. 

    Diagnosed in April. 1st session/12 week scan results coming Monday. Fingers crossed. 

    The stoma is going to be a learning curve but should settle into routine. As will treatment days, bloods, consults and scans. 

    Be honest with the consultant and team. Ask for help and tell them when something is a bit off. 

    We are lucky and have a corner of our unit where a Macmillan team offer support. Do use them. 

    Love and hugs