Radiotherapy break then chemo treatment plan

  • 6 replies
  • 131 subscribers
  • 186 views

Hi all,

I was wondering if anyone could share their experience.

My mum has stage 4 rectal cancer with a small number of liver and lung metastases. She’s just completed 5 sessions of radiotherapy and has her next oncology appointment three weeks after her final radiotherapy treatment.

Is a three-week break after radiotherapy fairly normal before starting the next stage of treatment? I understand the body needs time to recover.

She also hasn’t been given a chemotherapy start date yet. At the end of May, we were contacted by the chemotherapy nurse team, who said the booking team would be in touch with a date snd discussed amongst other things, but we’ve not heard anything since. I contacted the Macmillan nurses, and they said they think the next oncology appointment there will be discussion about treatment plan as well as follow-up post radiotherapy, but I’m just wondering if this has been the case for others.

I also asked them about what to expect after radiotherapy and whether there was any post-treatment follow up sooner than the next oncology appt., as we weren’t really given any, but they didn’t respond to that part of my message.

Has anyone else had a similar timeline or communication experience? I’d really appreciate hearing how things worked for you, as it’s the waiting and uncertainty that’s so difficult.

Thank you. Heart️

  • Hi  

    I am sorry your mum is going through this. It must be a stressful time for all of you. I have secondary cancer of a different type so I don’t have direct experience. But I noticed your post hadn’t been answered by anyone so I thought I would try to help from my own experience of treatment. I have had both chemotherapy and radiotherapy. Although the consultants in both disciplines are called oncologists, they are usually separate people. A medical oncologist deals with chemo, immunotherapy etc, and a clinical oncologist deals with radiotherapy and drugs that can be dispensed but don’t need a trip to the oncology day unit. 

    If you look at the appointment invitation it may mention whether it’s with the medical or clinical oncology team. If it’s the former it will be to discuss the plan for chemo, and the appointment schedule will either be communicated then, or following the appointment. If it’s with clinical oncology it will be a follow up on the radiotherapy. 

    I had my treatment the other way round and there was a short break between them to allow me to recover. 

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission

  •   

    Hi, I hope you’re doing well.

    Thank you for your reply and for sharing your experience.

    Unfortunately, Mum has suffered some quite severe side effects from the radiotherapy and was admitted to hospital yesterday with hyponatraemia (low sodium). They are still investigating the exact cause, but the current impression is that the constant bowel urgency and frequent bowel motions have left her dehydrated. It probably didn’t help that she had been advised to keep drinking lots of water at home to counteract the heat and dehydration but now her blood results shows the reverse, and the team think this may have contributed to diluting her sodium levels.

    She’s really been struggling, but we’re hoping this is all a temporary consequence of the radiotherapy rather than another setback that could affect her treatment plan.

    Also, I somehow accidentally flagged your message, I’m so sorry! I genuinely have no idea how I managed to do that. I think it’s the lack of sleep over the last 24 hours. I also can’t seem to work out how to unflag it!

  • Hi Monica

    So sorry to hear your mum has been admitted to hospital it must be such a worry for you I hope she gets better soon she is in the best place to be looked after to get a full recovery they will monitor everything hope you can get some rest after all the worry let me know how your mum is doing only if you have time

    Xxxx

  • Hi Sans,

    thank you for the lovely message. We are really hoping that this is just a slight setback due to  radiotherapy  and wont affect the other treatment plan in future. 

    All specialists are working and aiming to correct the hyponatraemia and underpin real cause and deal with the radiation proctitis will be in hospital for atleast few days.

  • I am sorry your mum is in hospital. It’s not unusual to get admitted at some point during treatment - it happened to me twice. They are very good at working out what’s what and I hope she will be able to come home soon. 

    Don’t worry about accidentally flagging me. It just puts the post into the queue for moderation and they are released back if they are ok. It happens regularly. 

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    I am a Macmillan volunteer.

    I have metastatic Triple Negative Breast Cancer, in remission

  • Hi Monica how is your mum doing is she still in hospital 

    Xxx