My cancer was missed in my August 2024 colonoscopy. Symptoms got worse over the following year, resulting in a T3N2aV1 rectal tumour found in my August 2025 colonoscopy.
I have had LARS and an Ileostomy last November and chemo last January. Only managed 2 rounds. I was affected so badly by it, I quit early. My oncologist warned me about not having the full treatment but fully understood why I stopped (I was in a bit of a state at that point).
I'm just not sure what happens now. I was told I would go straight to surveillance but not sure whether I will be contacted or if I'm supposed to sort stuff myself. I know I have to book for CEA blood tests every 6 months but that's it.
I'm really feeling my mortality at the moment.
