My husband had stage 3 bowel cancer and had surgery to remove the tumour then 6 rounds folfox. He has bad neuropathy and had quite a few bad side effects.
6 months later he had a liver metatasis which he’s had a liver resection in February.
Hes been recommended Folfiri or capecitabine.
The tablets seem to have awful side effects. Has anybody been on them without awful side effects?
Theres a 50% chance the metatasis will come back any way so chemo would be to try to reduce this.
Any comments would be appreciated.
Hello Beanie. I am on these currently half way through my second cycle of eight. I am managing very well on them. My feet are a little sore but very manageable I do have a number of the symptoms but again inly minor Impacts that do not impact on my daily life. I have had no sickness with just the odd bit of loose stools. I do get fatigue but just pace myself. I moisturise my feet and hands daily with Aveena which works a treat. I was terrified when I started taking them waiting for the storm to hit and emotionally battled with myself about why I was poisoning myself. Not everyone is poorly on them. I will continue with them for as long as I can as part of the Adjuvant treatment. I look forward to my mini break off them and have started planning trips away etc for this break which includes a few glasses of wine. I am 62 and not the fittest of peeps. I am under no illusion that as my journey progresses side effects might worsen or they may not but at least I am trying to give myself a chance of seeing through my epic retirement which I thought would be on hold. I hope your dad has a similar experience. Capecitabine is OK for me at the moment.
Hi Beanie,
I've just completed 4 weeks of capecitabine, combined with radiotherapy. I had one day of mild nausea (and already was given anti sickness tablets which cleared that up) - and as I progress I've found myself getting a bit more tired, but that also might be from the radiotherapy.
I was really worried as I was talked through all the list of potential side effects, and I think the impact does vary person to person and isn't all doom and gloom. Although one thing that might have helped minimise side effects for me is that I'm pretty young (34).
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