I’ve had one hell of a year. Long story short, I was diagnosed with colorectal and endometrial cancer. I had surgery to remove part of my bowel and to have a complete hysterectomy. There were complications during surgery and I ended up with kidney failure and spent six weeks in hospital.
due to the surgery I had to have a temporary stoma for 3 months, this was reversed in May. My cancer team are brilliant and have scanned me regularly since, mainly due to the fact that my CEA levels keep rising. When I had the cancers my CEA was 10 since then they have steadily risen and are now 33. I’ve had 2 PET scans, loads of MRI’s and CT scans, two colonoscopy’s and had an ultrasound on my thyroid as that showed on the PET scan but everything has come back as negative and the nodules on my thyroid are benign.
my colorectal team are completely confused as to why my CEAs are still rising when there is absolutely no sign of cancer. They say either there is cancer that is so microscopic that the scans can’t pick it up and I just have to keep being scanned until it shows itself, or I just have high levels naturally. But my levels were only my 10 with cancer.
im now living every day in fear wondering what the hell is wrong with me, levels this high can’t be good but everything shows as clear.
I didn’t have chemo or anything, just surgery, all stage 1 cancer and all lymph nodes were clear .
has anyone else had anything like this?
Hi Misty1975 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
It does sound like you've had a very hard time of it so I hope someone will be able to pop on and share their experiences with you.
While you're waiting for replies, it would be great if you could put something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Thank you for your reply 
Thank you for your reply, I’m hoping it’s just naturally high levels but at only 10 when I actually had cancer I’m not holding out much hope 
