This time last year I was preparing for 6 months on Capectibine tablets for mopping up purposes after having part of my colon removed. In Late July last year a follow up CT scan was clear and I was told my cancer had gone even though my tumour count was still 5, and I was put on a 5 year plan. The nurses said the doctor would probably recommend a PET scan to find out why my tumour count was still high, but that never happened.
In October I had a routine blood test which showed my tumour count had risen to 10. A further scan showed suspicious activity around my right urethra to my bladder and I was referred to a urologist who carried out a cyscosopy and inserted a stent in December.That has left me with an overactive bladder. Still no mention of a PET scan at this stage.
A routine Colonoscopy in November was also clear. Further testing in January showed issues, and at last a PET scan was done. This has revealed several clusters around my colon area and now I’m about to start FOLFOX for 6 months tomorrow.
i am terrified as the doctor has said my cancer isn’t curable now, they can only control it. I would really like to know why giving me a PET scan took so long. If it had had been done back in July when the nurses thought it would be done, I’m sure I wouldn't be in this position. I’m not only terrified, I’m absolutely furious. I am firmly convinced that my case has been mishandled, and I’m suffering for it.
