Just started CAPOX

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Hi to all.

Ive been lurking in the background on this forum for a while since diagnosis, having a read on everyone’s journey.

Now it’s my time,

I’ve just returned home after my first infusion (Oxaliplatin).
The idea of me writing this is is no different to others before me, as some have said “it’s good to talk” (old BT ad I think).

I had my infusion whilst having my feet and hands in a Hilotherm machine which the nurses at QE Woolwich were keen for me to try, as I speak it clearly helps, as my right hand which had the cannula in and couldn’t have the cooling glove on is very sensitive to cold (why is it when someone tells you don,t touch cold things as it’s going hurt, we do) or maybe just me then.

By way of my back story, for those who maybe in a similar boat.

I am stage 4 upper rectal cancer which has spread to the liver, I’m on a CAPOX treatment of 8 cycles with Neo-adjuvant intent.

I will be reporting back with side effects etc. hopefully with the aim of helping others in a similar predicament and of others posting their thoughts as well.

For those who may read this and not return, Merry Christmas and a Happy New Year, for those who intend to return see you soon.

Babotie 19 days ago

Hi Happyhammer

Its great to hear you've had the Hilotherm machine. I have stage 4 colon. I had Oxaliplatin 6 years ago which caused permament peripheral neuropathy in my feet - to this day they partially numb. Makes shoe buying pretty difficult (have donated scores of boots/shoes to charity over the years), and I cannot have Oxaliplatin again because of peripheral neuropathy. At the time of chemo, I also got effect on my hands, but that came back - the permanent effect was in my feet.

Great that you getting the Hilotherm booties, hopefully safe from any peripheral neuropathy! All the best for the rest of your treatment. Have a good Xmas.

PS on your cold sensitive hand - both my hands were very cold sensitive on Oxaliplatin, I placed a pair of gloves by the fridge which I would put on if i needed to get something out fridge/freezer. I also found my nose & ears were super cold sensitive, after a few rounds - so got myself a balaclava, looked like a bank robber when I went for a walk but hey ho I was toasty. ;-)