Recently diagnosed, not sure what happens now?

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Timeline is something like:

12th Sept - Colonoscopy

18th Sept - MRI

23rd Sept - CT

I've heard nothing at all from them since.  Nobody gave me any advice about diet either (I've got a partial blockage... 80% to 90%).  I had to figure out the low residue, small portions, plenty of fluids thing for myself.

Is this normal?  I was kind-of expecting someone to get in touch to tell me what's up.  I have MyChart and the only update on that was Friday 3rd, which added the colonoscopy, e.g. 3 weeks later.

The lack of communication - even a, "we're getting our ducks in a row" letter or call has me confused.

Thanks for any advice you can give me!

  • Hi  and a warm welcome to the board. It does seem quite a long time but I’m wondering if the results from your colonoscopy have only just been received? The next step is usually for your case to be discussed at the MDT (who tend to meet once a week) to discuss your treatment plan then a meeting with yourself to update. 
    I’d be tempted to ring your hospital and ask to speak to the colorectal support team and see if they can tell you when you’ll be seeing your consultant? 

    Please keep us posted?

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi, 

    In my area (south wales) the multi disciplinary team (mdt) meet every two weeks. In this meeting the various professionals discuss what they have seen in the scans etc and develop an appropriate plan and then get in touch with you to discuss it /make an appointment to discuss it.

    They only discuss them when all the scans are complete and they have the full picture so based on your timeline it sounds like you may hear soon.  Did they give you contact details for your team? If so do call as they are so helpful.  If not call the hospital and ask who to contact.  

    i hope that’s helpful. 
    cerysm