Palliative treatment

Sorry to hear this enjoy every day as it comes and make memories that will last forever. Sending love and hugs xx

I am sorry to read about your husband’s diagnosis.

My husband’s journey is a little similar, palliative for the last 3 years, but still having a third line of chemo at present and waiting for the latest scan results.

I can appreciate it all seems so surreal, my husband was given just under 12 months to live in January this year. He is also quite fit and healthy most of the time, and most people wouldn’t even believe he has anything wrong with him!

We don’t ever really discuss the diagnosis, we decided we would continue as usual whilst making the most of everything and making special memories.

Although everything came as a complete shock, my tears and devastation will come at the end, as right now we have to try our best to carry on as usual, as that is what my husband wants and I personally am not prepared to waste my precious energy on anything else. 

Just some thoughts, have you tried to seek a second opinion or looked into any trials?

Wishing you both all the best x x

He was given 6-12 months and classed inoperable in September 2020, we didn’t accept and fought(still fighting) we had excellent results from original palliative chemotherapy in 2020 and with surgeries and chemotherapy he has actually been cancer free at 2 scans over the last 5 years but never 2 concurrently, scanned every 3 months. with the placement of all the tumours surgeries can’t help anymore because if he does have surgery in any single area the other tumours would grow during recovery from surgery, his original chemotherapies that had excellent results has stopped having an affect on his cancer so although he is amazing and still having treatment the last few scans have shown no growth which is amazing but we can help hope for reduction, they have said a very positive scan now is a no growth scan, but you always hope for reduction. We are massively positive people but sometimes I just get overwhelmed and used this post to vent instead of changing anything between us because we agreed positive thoughts all the way x thanks for reading and your kind reply 

Sending lots of positivity to you and your husband, I feel your pain and 100% agree about living your life (your best life) now xx

Hello again,

Sadly that all sounds so familiar! 

My husband was initially diagnosed in 2021, literally just after we exchanged contracts on our forever home. We left the hospital after initially being told and ordered our new furniture, mad I know.

Although initially stage 3, but after the right extended hemi op and mop up chemo, 9 months later it had spread to both lungs, retroperitoneal and neck. Not operable.

It feels like you are written off when it has spread to so many other places, unfortunately.

What treatment is your husband currently having? If you don’t mind me asking. My husbands is on Longsurf and Avastin.

This is a good place to have a vent. Although I didn’t mean to imply I never had the odd little meltdown occasionally, especially at the scan results.

And thank you for your kind words too x x