No clear path and worried

Ozzy, youve come to the right place, we've all been where you are, and this early period is absolutely the worst time of all. It does sound strange that you haven't been given a timeframe for when the investigations into exactly what the diagnosis is. Have you not even got a follow up appointment?

Typically you will have been given a point of contact, perhaps a nurse in the oncology team? Once a diagnosis has been established, then a plan will be recommended and explained to you, and things tend to be less worrying once that has been established...but the wait to get to that point is truely horrible. Whatever the diagnosis, there will be a protocol already tried and tested which they will recommend to you. Nowadays there are so many treatments, new and old, and you´ll be guided by a multidisciplinary team of experts. 

I´m sure that you´ll get replies on here from Macmillan nurses who can guide you as to what you cand do to contact the hospital and ask for more information, a date for consultation if you don´t have one already etc. etc.

You are not alone, there´s a whole community here that are at various stages of this journey. everyone of us knows what this prediagnosis and treatment planning is like. Not only are you not alone, but you also have control and will involved in all decisions, and looked after by a team of caring, experienced people ready to listen to you and to support you. It does seem an entertinity to get plugged into the system, but you´re not being ignored. The pathologists will be carefully evaluating the biopsies, reporting back to the oncologsts, and maybe surgeons if it turns out that surgery is part of the treatment plan. As the saying goes "this too will pass". The period you´re going through now, with your mind constructing and imagining all kinds of scenarios, will soon be over, and you´ll know exactly what´s going on. 

All the best to you, and let us know how you get on.

Thank you Chris. It feels really surreal. I have contacted the hospital and discussed further. They said all waiting on histology report to figure it out if it is rectal cancer spread to lymph nodes or lymphoma spread to rectum. 
Hopefully I will here next week but I am very scared with the wait and what’s coming my way 

That’s natural, and it’s easy to say “let it go” because your worry now makes no difference to what they tell you next week, but both the scenarios you mention are treatable. Until you find out the diagnosis and treatment plan try to get out into the fresh air, take some walks, try some relaxation tapes on you tube, maybe even give your GP a call, explain the situation and ask for a prescription for some anti anxiety pills. And breath!

Hi there. Im in virtually the same position, as I’ve had some initial tests and been told I’m being referred to the lymphoma team, but realistically, what next. It’s super destabilising 

It is now confirmed that I have Lymphoma. I still don’t know much details but I have just had my PET scan this afternoon and I have my face to face appointment with Haematologist booked in for Thursday. I hope I will have some answers and some sort of plan for my treatment. 

That’s guaranteed! Things are so much better once you know what you’re dealing with, and what the plan is. 
all the best…