Den64 you haven’t said when you had your infusion? I’m on FOLFOX and find days 3-7 the worst. If things don’t improve speak to your oncologist as they can reduce the dose to a level you are able to tolerate. They generally start with the highest dose. I’m on cycle 7 of 12 and have had the Ox part of my treatment removed completely and am now able to cope a lot better.
I had 5 cycles of Folfox in the first half of 2021 after an LAR; I should have had 6 cycles but that’s another story.My dose was reduced after the first session and was sometimes delayed due to low white cell count.
I definitely suffered with what is known as ‘brain fog’.My brain didn’t seem to work as fast and I found it hard to concentrate and think (like wading through treacle).I wasn’t working so I just rested as much as I could. I found being outside in fresh air helped a lot.I also kept a diary of how I felt each day which helped in knowing which would be my ‘better’ days, as a patten emerged.
The worst of the feeling went 6-8 weeks after finishing chemotherapy but I feel as though my brain has never returned to how it was before (I still find it hard to multitask where before it was easy) – just another new normal!However, on a positive note FOLFOX seems to have done what it was supposed to do.
