Capecitabine

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Hi

I am on 2nd week of Capecitabine after my right side hemicolectomy and feeling good, apart from tiredness.

Do the symptoms come gradually over the weeks, or hit big time ?

Also, I used to do aqua aerobics and I understand swimming is a big no ? 

Thank you for listening 

  • Hi M20,

    For me they built up over time.  The chemo free week I often felt worse than the chemo weeks.  

    However the worst side effect for me was the fatigue.  Taking some exercise (odd as it feels) can help with this. Walking is great. 

    Swimming is a big no no unfortunately. I was told it was due to being in the pool with others and a greater chance of infection. The first time I went into the pool post chemo I made the world’s oddest noise, somewhere between a cry and a laugh.  I know it’s not nice to not be able to do the activities that keep you feeling good, but it’s not for long. 


    Best wishes

    CerysM

  • Thank you so much for replying. 

    I only have the tiredness, so feel a fraud in some ways ..  Then dreading other side effects hitting ! 

    I find it hard to get motivated off the sofa ! 

    What other side effects did you have.  I'm just so tired 

    I'm 64  x

  • I didn’t have many other side effects. 

    I had (still have) some patches of dry skin, I have some diarrhoea but I had pills for that. Towards the end of the six months I started to feel a bit sick and that’s when they decided to stop it, but I also had pills for that. They will have a chat with you before the start of any new cycle to see if it needs to be adjusted or you need help with side effects. 

    it affects everyone differently. Some people sail through it. 

    I worked all the way through mine but on reduced hours.  I still find I get tired but I am back to exercise which helps.  I’m 52 if that helps?

    cerysM

  • Hi M20.

    I have always felt the same since my first session in February, and I’ve just started session six of eight. Tiredness has been my only issue really but that is easy to cope with I’ve found - just have a nap if you can. Keep your hands and feet well moisturised so they don’t start to dry out and splits develop. I have been using E45 twice a day and it has worked well for me. Having said that, I had the pharmacist see me along with the nurse last Tuesday as she thought my skin on my hands seemed too dry - which it was despite my moisturising. She prescribed a high intensive cream called ‘Eucerin’ which is excellent and a Hydrocortisine cream for some red blotches on my arms. All going well. Always ask the staff if you have any concerns about anything - they are class people with your interests at heart. 

    Be guided by your consultant surgeon on what you can and can’t do. I play outdoor and indoor bowls but he wouldn’t permit it until my wound was completely healed. All good advice I reckon. I would think your aqua aerobics would be a no no untill your wound is sealed shut.

    Good luck with your Capecitabine and I hope your journey is problem free.

    Take care.