Fit test results 396.8, urgent colonoscopy next week

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Hello. 

I have had PR bleeding and abdominal pain and lost almost 4 stone,  all getting worse for around 4 months.

3 weeks ago I went to the GP regarding my symptoms,  I put it off for a while as I have a long complicated medical history,  including lupus overlap disease, FND and have previously had a hysterectomy for endocervical adenocarcinoma along with a history of endometriosis and adenomyosis. So I didn't want to go and it be put down to anything pre-existing.

I previously went to university to study medicine however had to leave due to my health, so I feel silly I put this off. 

So I eventually went and the GP sent me for blood tests, a faecal calprotectin and a FIT test, 

The fit test came back positive, and they called me the next day after the positive came back to book me in with the colorectal consultant, I went to the appointment yesterday and asked what my levels were and they said they were 396.8, I asked if it was correct that the scope is 2 to 400 and >10 is what's deemed positive and he confirmed that's correct, and he has booked me in for several tests as a "P1" urgent, he asked if I had any questions, I said no. 

I guess I was in a daze and now I don't know why I didn't ask more questions, from my basic knowledge from university I know those figures aren't good. 

But now I am wishing I asked what those figures mean and the percentage/likelihood of them finding something. 

The way I process things is I always need to know the worst case scenario and prepare as any better news is a bonus to me. 

My partner is trying his best and tells me to be positive and I know he is trying to help but my head us spinning and I need to know the figures/percentage to prepare myself. 

I just want to be told straight, the waiting and positive thoughts is just too much for me.

Please help.

  • Hi  and a warm welcome to the board. Yes that’s a high reading but it’s an indication of blood in your stool not a diagnosis of bowel cancer. I’ve seen posts from people with lower figures who’ve been diagnosed with bowel cancer and posts from people with high figures who’ve not been diagnosed with bowel cancer. It wouldn’t be fair to you to suggest figures/percentages as you’re an individual and some of the symptoms might be caused by your other medical issues? What I will say is that

    Blood in the stool can be caused by several things including polyps, ibs, colitis, diverticulitis etc. 

    Bowel cancer is very treatable especially if caught early and is notoriously slow growing.

    The main thing is that you’re getting checked out and will hopefully get your appointments through within the next couple of weeks. I know the not knowing is hard but try not to stress about things that aren’t facts as the anxiety will only exacerbate your symptoms and then you’ll stress even more?

    Take care and please let us know how you get on?

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm