Hi,
I have my 1st appointment on Friday to get all my results from my Colonoscopy and CAP CT scan.
After my colonoscopy the doctor told me straight away it was cancer, I saw it myself and they took 7 biopsies.
Who’s likely to be at my appointment?
My husband and eldest son are going with me and my son has prepared a PDF of questions, bless him. (he’s a teacher)
My brain is a whirlwind and I’m incredibly anxious so I’m more than happy to let my son do the questions and answers part.
I know I’m seeing the surgeon, will there be an oncologist there too?
Will they be able to answer questions about chemo and stuff?
Thanks x
Hi Lizz74 , I recently had my appointment following my colonoscopy, MRI , CT scan and MDT meeting. I too was told after my colonoscopy that I had a cancerous tumor.
I met the nurse and surgeon who explained where my tumour was and what the surgery plan was.
They confirmed for me that there was no signs of spread and that I didn't need chemo or radiotherapy prior to surgery as it was operable and that it was booked for 25th April.
They said that 2-3 weeks after surgery they will meet me again and discuss if any lymph nodes were affected and therefore whether chemo would be needed.
They also ran through the grading of the cancer which for me was T3, M1, N0.
It was very reassuring to speak direct to the surgeon and the nurse was brilliant in explaining my cancer. It helped me reading up on everyone's journeys as I recognized the language they used and it made better sense.
I had loads of questions written down but they pretty much answered all with the details they provided .
They basically said to me to enjoy the next 2-3 weeks and just to avoid alcohol a week before the surgery.
I have just had my pre-op assessment which was a fairly standard health check of weight, height, blood pressure and MRSa swabs.
I was told by loads of people on here and other forums that once you get a treatment plan you feel so much better. I definitely feel that way but completely understand the anxiety you have until Friday.
Try to not let the what ifs take over and try to stay positive.
Fingers crossed for you .
Hi Lizz74 like Forest76 for my husbands 1st meeting we met with the surgeon and colorectal nurse.
they explained where the Tumour was and course of action
His was T3 N1 M0 but because it’s very low in the rectum that surgery will result in a colostomy, however it was inoperable so suggested Chemoradiotherapy and Chemo first to shrink the tumour then surgery
so hes had 25 sessions of radiotherapy with capcetabine Over 5 weeks then 3 weeks after that started Chemo infusions of which he needs 4 in total each on NBC a 3 week cycle with capecitabine for 14 days after.
Hes currently in the middle of cycle 2.
I’ve created a thread calked CAPOX JORNEY on the forum which has a few peoples experience on there too.
Try not to worry until Friday - then you will know what you are dealing with and you will have a plan. The uncertainty is definitely the worst once you have a treatment plan it is easier and you have something to focus on.
Good luck
Sending a big hug ️
Bx
Hi Lizz74 My first meeting was with a member of the surgical team and a colorectal support nurse who had a chat with me afterwards to make sure i understood everything? They explained what treatment I would be having but I admit I zoned out a little bit after they confirmed there was no spread so it’s good that you have extra pairs of ears there and a pen and paper.
I was given this booklet at my first meeting which a lot of people have found helpful
https://bcuk.adidocdn.dev/Publications/Bowel_Cancer_UK_Your_Pathway_V10.1.pdf
Hope it goes well - as others have said, once you have a plan in place then things will honestly feel a bit better
Take care
Karen x
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