Good afternoon,
I am looking for some guidance please. I have had a bit of a weird experience compared to the norm.
I went to the GP last June with iron deficiency anaemia. I had blood tests showing raised liver, high IgA, high ImmE, numerous deranged results. GP did not ever mention cancer. My FIT test was positive then in August.
In September I was unwell and ended up in the hospital with severe pain lower back. They did MRI but as I had an old disc gotten worse in my lumbar they passed it off as that. I complained saying this is something else for numerous reasons. I was dismissed a s nut job, then the battle of words began.
I ended up homeless as semi paralysed they passed it off as pain.
Then the GP calls said your FIT is positive, I said I cannot come as stuck homeless can't drive with no wheelchair. She did nothing to help.
Finally after another hospitalisation for worsening neurological symptoms and numerous complaints did they start to suspect something is going on.
Then after my own genetic testing and finding MSH6 Lynch I hit the roof. I realised I was on an URGENT referral with Gastro for 7 months. I have all the cancer symptoms, dark patches on face, white patches all inside of my mouth, roof of mouth discoloured and patchy white, aching lymph nodes.
It has been error after error, now a total cover up.
I had the gastroscopy and endoscopy. They took 6 duodenum biopsies 1 on the nodular OG junction. They turned the camera at the end of the colonoscopy to look at the rectum or anal canal? There were long slightly raised blood red lesions the length of it, maybe 3 or 4. I thought oh, that's not good. They made a point of saying the colon looks good, but did not mention the rectal lesions on the report or in person.
Is this normal behaviour, or have I terrified them all due to my complaints and they're all worried of legal action if they say the wrong thing?
I feel somewhat guilty I have created this situation with complaining but I just want honest answers. If you saw my notes, I think anyone sane would be pretty furious. Now I wish to turn the anger to constructive dialogue.
My leg has signs of denervation so could be paraneoplastic motor neurone damage, only time will tell now but that's the most likely scenario.
Thank You
