Panitumumab instead of Cetuximab

Hi CrumpetsOrToast 

I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

I've done a search in the group looking for posts which mention panitumumab and found these for you to have a look through.

Wishing you all the best

Morning 

You can read some of my posts that Anne has put a link to and/or look at my profile.

I've been on Panitumumab since August 2022 the first six months were tough. Admitted to hospital with bleeding had a blood transfusion, really bad skin rashes on my face and constant low white blood cell count which delayed treatment.

However after dose reductions things settled down and I have been okay for the past two years. I am currently on 80% Panitumumab and 60% 5 FU. 

Regular side effects are dry cracked skin - use plenty of moisturiser, diarrhoea/constipation - medication available.

One more thing once prescribed you can only have a maximum six week break or funding is withdrawn (that's what my situation is anyway).

Please remember that everyone is different, talk to the nurses about any issues and if you do decide to take it hope all goes well for you.

Best wishes 

Caroline 

Thanks Caroline - lots of useful info there.

Thanks for nudge Anne.

I had done the word search and hooed thread specifIcally for it may draw out more info.