Hi there. I have recently had surgery to remove a stage 2 bowel tumour. T4. 24 lymph nodes, all clear. I have had two conversations with oncologist. Treatment up to me. They don't know if treatment will be of any benefit. Risks may outweigh any benefit, if any. The T4 is the only reason they considered giving option of treatment. If I say no there is targeted immunotherapy down the line if cancer comes back. There's a possible genetic factor with my cancer, lynch syndrome. Waiting for testing. So cancer might come back no matter what I do. Seeing consultant tomorrow to give final decision. Really scared of side effects. But what if I don't have it and cancer comes back. Or have treatment and in year need more anyway. I'm lost.
Is there the option to have the capecitabine tablets without the oxi? You’d still have some side effects but it’s less brutal (for most people) than having the IV oxi as well.
I’ve just finished four rounds of Capox (so both drugs) and it wasn’t pleasant but I coped. It effects everyone differently and if you do struggle there are options to reduce the dose.
Thank you for replying. They want to give both drugs. And yes they will reduce else if side effects not good. Just they are saying I may not get any benefit from the treatment. So if I have this treatment cancer still may come back. But targeted treatment down the line should be of great benefit. Reading so much. Debate on whether chemo effective for stage 2. Don't know .
You are in an tough position with Lynch syndrome. This is a very personal choice. 8n your position, I'd be tempted to try the treatment and see how it goes. Yeah, you might get cancer again anyway but at least you'll know it wasn't because you skipped chemo. But really it's about what is right for you.
Good luck with your decision. It is a tough one.
Hi
I just had full APER after 6 months of Oxcaliplatin, Irinitikin and 5FU, followed by 25 rounds of radiotherapy with Capecitabine.
Relatively speaking I was veryucky and sailed through it all with few long lasting effects.
Working with my gorgeous chemo nurse George we worked our quickly good dinner night before and high protein light breakfast on the morning were good options and a few dry crackers in case through my 7 hours of infusion worked well for me then I was ready for a tiny dinner around 10which always included an individual triffle.
I just had my APER November 28th. Unfortunately although the surgery was very successful I succumbed to some nasty antibiotic resistant bugs x 5 so I got out 7 weeks later. Right now I am still suffering digestion and bowel issues...but nothing too bad just annoying...
But I'm in the same boat. Do I go forward for adjuvant treatment knowing my brilliant surgeon cut out all the cancer and took local spread nodes...but are there any lying cells elsewhere...waiting?
My case for taking the adjuvant treatment is both myself and the surgeon (who was exceptionally brilliant lovely - I described him as liquid live in shoes) invested so much over the last 12 months, I can't give up atthe final hurdle otherwise if it did come back I will always wonder 'what if', but by taking it I've given up 7 months to hopefully gain many more years.
This is more important to me to tey because my youngest just turned 13 his brother turns 15 next week. I'm not ready to leave them yet so I owe it them to fight as hard as I can.too.
I hope my personal account helps.
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