Waiting........

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Hi, hope you all managed to find some relaxation over Christmas.  Not posting for answers because there aren't any, I know I just have to...... wait! It's so hard to not feel forgotten,  but I am in the system.  Colonoscopy was 14th Dec, not had biopsy confirmed,  NHS App (I deleted it due to anxiety but made myself look today) still says probable malignancy..... had CT scan...... booked in for Liver MRI. Not actually spoken to anyone from Colorectal team. Veer between feeling OK and feeling utterly panic stricken imagining all kinds. Plus I feel pretty normal physically........ so there are moments when I forget. Anyway, sending best wishes to all x

  • The waiting is awful I had breast cancer confirmed on 19 dec, now need to wait Til 2 Jan for ct scan. Then wait for results. It’s  making me depressed. I’m really struggling. Once I know the results or ct scan then I can prepare for surgery. 

    • Hi   so sorry you are in this position,  it's so very difficult and really tests you. I have had some success with distraction,  I find going outside helps when I can feel myself spiralling. Don't forget too, your doctor can help, I have thought of asking for anti anxiety meds to help. The not knowing is awful. Sending a hug x
  • There are multiple liver lesions that are of unclear nature on CT that need MRI, most are benign but too complex for CT to characterise well.

    I was discharged from my 2ww pathway a week ago and still says "possibe cancer" it is slow to change.

  • Well, got a cancellation so saw consultant today! Confirmed cancer in ascending colon, operation end of Jan. Indeterminate lesion on liver that will be checked out via MRI. So am moving along, v keen to get this tumour out!!!! 

  • Bad news about the diagnosis but good that you now know where you are and there is a firm plan in place to deal with it all - as many on this board say, knowing is better than not knowing. 

    Will be thinking of you. 

  • Thank you.  I knew it was cancer really, so there is definitely relief to get a plan, but also overwhelm too. It's a lot to take on, as you all know.  Thanks again.

  • So sorry that they found cancer but I was the same as you.  I just knew.  

    amazing that your operation is booked and a plan in place.  For me this was the best news.  

    im 2 weeks  post op today and I feel really well just sleepy which i feel is my body repairing.  So I’ll keep everything crossed that you will too.   
    xxxx

  • Hi  ah thanks! I have really empathised with your posts, it's so tough! I really was starting to doubt my ability to carry on waiting and wondering.  Just need to get to grips with the liver lesion and find out what that is,  then hopefully get the cancer out! So pleased you are doing so well. Rest all you can. The nurse was saying today it's a big operation so carry on getting that sleep! Xxxx

  • Waiting is by far the worse part.  Yes they told me it was a major surgery but to be honest I just needed to be there.  My daughter was born by emergency c section so I just kept telling myself it’s no worse than that and it wasn’t (plus no baby to look after) The staff when I was admitted were amazing.  I got good stuff to calm me down They even told me I was going on the afternoon list and 10 minutes later I was getting prepped.  You’re awake one min and the next it’s done and I will be forever grateful that my cancer is out.  Ive not heard about the results from what they took and I’m thinking if they found anything there would be another plan so I’m hoping that I’ve heard nothing because they are concentrating on people who need the resources.  Four leaf clover