After a tense few days we have had biopsy results today that have confirmed my husband has cancer in his rectum. His consultant has said that initial signs are that it’s contained and is treatable but he will need to have further scans and tests for staging.
He has been in hospital for the last week because he has been unable to keep food down. Initially he couldn’t keep fluids down but is managing that now. They are looking at discharging him tomorrow but have said that we need to concentrate on getting his strength and fitness back as much as he can to stand the best chance for treatment. Can anyone give any advice on a way forward with this? We’re not strangers to anti hemetic meds as he has suffered with sickness on and off for a few years. Is there anything in particular we should be asking for when he is discharged? Also is there any diet or supplements that worked well for anyone?
I’m hoping at home things will be easier because the food will be nicer (sorry nhs) and he can time his medication better but I’m just worried that he’s going to go downhill fast if he continues as he is.
thanks for reading
Hi WeezeM and good to hear that your hubby is coming home. The food in hospital isn’t great and it’s also exhausting with everything that goes on around you.
The scans will check that the tumour hadn’t spread to any other organs and then the MDT (multi disciplinary team) will meet to decide on a treatment plan. Often tor rectal cancer the treatment is a course of chemoradiotherapy to shrink the tumour as much as possible before surgery.
As the consultant has said it is a case of getting him as fit as possible and with some weight on before treatment starts. They generally recommend a low residue diet which is pretty much a beige diet of foods that won’t aggravate the tumour. I’ve attached a link to some suggestions below
If he’s really struggling then you could ask his GP to prescribe some build up drinks calked Ensure which are about the size of a hottie of Actimel but contain about 250 calories- some flavours are better than others! There’s some more information in the link below too
https://www.macmillan.org.uk/cancer-information-and-support/impacts-of-cancer/building-up-diet
Hope he continues to improve and then he can start treatment and get this tumour in the bin
Take care
Karen x
I'm sorry your husband is going through this.
From my own experience, the low residue diet, as recommended by Kareno62, is a good idea since it limits the amount of waste that must pass through the bowels and rectum. I ate a lot of rice with gravy, pasta, etc. The Ensure is great if he struggles to eat enough. I wish I had done more with that.
Emphasize protein since it is critical for healing and he will need it for whatever treatment course is recommended. Also keep up on exercise as much as he can tolerate.
WeezeM,
I found that eating fruit flavoured jelly, topped with yogurt and ice cream, was easy to digest and rich in protein. Also pasta in the form of filled tortellini (cheese) cooked until soft then drizzled with tomato sauce - not ketchup - and sprinkled with parmesan was substantial, That and plenty of drinking water every day kept me going in the lead-up to surgery. Tea and coffee as usual, but with Rich Tea biscuits because they are made from fine flour rather than more granular ingredients. None of it did me any harm and I kept this as a regime for some months until surgery and its effects were completed. Once that is over a near normal diet can be resumed. Mentally, I thought in terms of a drainpipe partially blocked with a lump of concrete and what might, or might not, pass through the small gap that was left!
Best
Dulac
Hello WeezeM,
My husband had rectal cancer (all clear now), at the beginning before he started chemo he was losing weight the nurse advised protein shakes (100ml) I requested these from the doctors, they come in a few favours, and they are 300+ calories per drink, get the smallest ones 100ml if possible. I added a little cream, just a bit, to make them taste a little more like milk shakes. He also tried the low residual diet, though he did have some things he likes. Anything to keep the weight up. Another thing we tried was powdered milk, it has a lot of calories and doesn’t increase the volume.
Regarding Exercise, we walked everyday and he did some stretches to keep him supple as we knew once the treatment started he wouldn’t feel like doing much.
I hope this helps.
Take one day at a time, you are both stronger than you think.
Tam
Thank you everyone for your words of advice. He’s been home for a few days and seems to be keeping food down much better. Having the low residue diet but only managing a couple of small meals a day so might ask for some of the shakes to replace some of his nutrients. Just waiting for our treatment plan now x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007