Immunotherapy

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Has anyone been through immunotherapy? I had a tumour removed last year and 6 months of chemotherapy. Follow up scan this week has shown enlarged lymph nodes and my oncologist is recommending immunotherapy.

As a lot of my chemo side effects were a bit of a suprise I was hoping for some practical information or advice on immunotherapy.

  • Hi BrenW welcome to the forum. I dont know a great deal about this but I have a friend at present who is having Immunotherapy and she says it is pretty grim with not very pleasant side effects for her. She is able to get out for a walk and is keeping away from social gatherings to give the meds the best chance of success . That said about side effects the Consultant had prepared her before starting this by letting her know the side effects so they didnt come as a shock or surprise while still not nice. I feel sure that one of the lovely folks in here will be along soon to offer more detailed experience and further.  

    gail

     
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  • Thanks Gail, I've been here for a while but a little quiet lately as I thought I was on the road to recovery! 

    Hopefully someone has some advice soon. 

  • Do Macmillan have any info re Immunotherapy? You could try giving them a call 0n 08088080000. Xxx

    gail

     
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  • I don't know why I never think of calling them! I will give them a call in the morning- thanks for the reminder!

  • The other forums you might like to pop onto is the lung and the melanoma forums as they have been using them for a few years now and have quite a few posts about side effects .

    I looked at them when my friend was on it . She had it with chemo and managed well despite being on both but harder to separate what was causing the side effects .

    Take care and all the very best. So sorry to see you back with this bump on the road. You could also read    Page . She is our poster girl for immunotherapy .

    They also seem to be using it for some patients prior to surgery now so good to see the progress coming through .

    I wish you every success .

    Court 

    Helpline Number 0808 808 0000

  • Thank you Court x