Bad news from Pet Scan

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Hi, I'm new here. My name is Renzo, I'm 59 with a wife Helen and two Chihuahuas.

After a bowel section (if that is what they call it after removing part of the bowel) last year and chemotherapy, my cancer has returned. 

In September I experienced rectal and back pain and some abdominal pain and bouts of nausea. Following a colonoscopy and CY Pet scan, I learned today that the cancer is back in my colon, is now in my left lung and they think it may have spread into my abdominal cavity, whatever that is. I am meeting the oncologist on Monday.

The nurse who rang me talked about further chemo but they also want to do a keyhole biopsy in my abdomin.

Obviously it's all a bit overwhelming. Because I am already experiencing some pain and discomfort, it feels that my cancer is a lost cause. I hope the Oncologist will give me some hope.

I have a number of questions but I will wait until after my Oncologist appointment.

Just saying hello:)

Renzo

Devon

  • Hi  

    So sorry to hear your cancer has returned and you require further treatment . It’s always a rough period pulling yourself back up for that but it’s certainly not without hope .

    My mum has had treatment for liver and lung spread and there are others on the forum who have Had a spread to the abdominal cavity .

    Going straight to chemo can be a very good idea as it not only gets to work on the visible but the invisible disease . Some people use chemo in a maintenance setting for literally years . Others get surgical or target treatment if possible . They always rescan and add in other approaches if possible .

    My mum had a spread at diagnosis back in 2009 when she was 67 and with the help of her team got to 2024 . Died at a wonderful 82 .

    She kept connected with life and spent her time focusing on her well being .

    take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thanks. That's a hopeful reply. Just what I need. I'm suffering with bad nausea today and it's probably anxiety related. But I have managed to eat some soup. Thank you again and I'm pleased that your mum managed to live so long with the cancer. She must have been a very brave lady. 

    Renzo

  • Remember and get a dietician involved if required . Mum used some build up soups to keep her going at various points .

    The initial anxiety is harsh but it does get better when you feel something is being done to tackle it .

    My mum would always talk about taking time to find her focus then it was best foot forward and thought about her well being and general life . But she did allow herself time and space to process it all  that is so important too .

    You have done well getting some soup to stay down when you feel that way .

    Heres to significant shrinkage . Mum actually had big tumours but chemo apparently works best on cells that are multiplying quickly as long as you are responsive .They literally shrank off the screen .

    Court 

    Helpline Number 0808 808 0000

  • Yes, i will ask about a dietician. Build up soups! Helen is straight on to it. Thank you for taking the time to help me. If only my GP was as helpful as you have been:)

  • Oh thank you . We have a wonderful GP . He is not allowed to retire and I feel so sad for people who don’t have this and he assisted so much .

    However you will get there , we got some complan soups in the shops . They are normally located beside the medicines . They have lots of nutrients in them so that and a piece of toast really helped  to ease the mind . 

    You can ask your hospital team about getting a dietitian involved . It’s good to get some professional advice .

    Our helpline might have some leaflets too .

    You could also tell your team you are a bit nauseous as they will be able to help you .

    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Thanks:) Will do.