Stage 4 Bowel Cancer

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Hi there,

My mum was recently diagnosed with cancer through a colonoscopy. Really thought it would be early stages as she'd had no other symptoms and has felt really well. But scans revealed spread to kidney, liver and lung. We're waiting on the treatment plan at the moment, thinking the primary growth site is bowel and chemotherapy is going to be the first point of call. If chemo goes well, they'll look to remove the kidney and the mass in the colon. They've said today this cancer would have been growing for a long time, it's slow growing. Adenocarcinoma. I don't know if that makes a difference to outcomes/prognosis. Th waiting game is hard.

Wondering if anyone else has had a similar story/experience to this? I know everyone is different. But wondering how much hope is realistic. Absolutely devastated, as I'm sure you all know your own versions of.

Sending love.

  • Hi JadeM,

    I'm so sorry to hear about your mom. Adenocarcinoma is the most common type of bowel cancer. But there is still great variation within this type and it isn't a predictor of outcome. 

    It is common for the cancer not to cause symptoms. In my case, i had no recognizable symptoms until the time of diagnosis. 

    There are people on this board who have survived metastatic cancer. Hopefully one of them will come on and share their story. It is much too early to give up hope.

    Best Wishes 

  • Hi  

    So sorry to hear about your mum . My mum did not have symptoms either . We were devastated to discover she had bowel cancer that had already spread to her liver . But that was back in 2009 . She also had one other thing that was a game changer for her in that she was really responsive to chemotherapy .

    She was able to use it to shrink the tumours down and that opened up other surgical options . She had a few other surgeries over the years and interventions but after fifteen years of good living she passed in the summer . She still had cancer , by this time in her lungs .

    All bowel cancer but she also had many tears off treatment and her body seemed to be able to control the microdisease for long periods of time .

    Treating it like a chronic condition took time to adjust to but it’s not without hope . She had the same cell type as your mum .

    Take one small step at a time , stay connected with life and keep pushing those boundaries by living a good life despite a difficult diagnosis . Allow yourself time to be sad too as it’s all part of the process .

    Send your mum my love and best wishes and in my mums words . Best foot forward !

    Court 

    Helpline Number 0808 808 0000

  • Sorry to hop on this post but your comment about people surviving metastatic cancer caught my attention. I'd be keen to hear more about these people's journeys. My mum has stage 4 small bowel and it would be great to hear some positive stories

  • Hi Susan13 and Court,

    Thank you so much for your kind and compassionate replies. I hear that success really does depend on her responsiveness to chemotherapy and treatment. We find out more tomorrow about the plan. It is so wonderful Court to hear how long your Mum lived well after her diagnosis. Thank you for sharing her, and your story, it gave me some hope. 

    CGxo happy to connect with you too, sounds like we might be on a similar journey and I'd too, like to hear more stories about surviving Stage 4 cancer. 

  • Definitely happy to connect, I've sent you a friend request if you want to chat x