Hello everyone,
I am 46 and was diagnosed with colorectal cancer in March.
I went to theatre for a bowel resection the end of April, however they couldn’t do the surgery as my uterus was too heavy from fibroids to move out of the way. I then had 4 cycles of Capox whilst waiting the 3 months for the next surgery. Beginning of September I had a full hysterectomy, bowel resection and formation of a temporary ileostomy.
My histology has come back showing that I have active cancer cells in 8 of the 35 nodes removed, including some blood vessel involvement and one that was away from my tumours. They found I had 2 tumours, one stage 3 and one stage 4 that had moved into my ovary. This has all been surgically removed and shows good clearance.
The plan is now no more chemo, as my tumour had minimal or no response to the Capox, and I’ve been told no other treatment is available for this at this point. So now I’m on 3 month bloods and 6 month CT scans.
I’m struggling with the no treatment plan as the cells were found in lymph and blood vessels, and I’m just waiting for it to pop up elsewhere. I have been told that as I had my treatment back to front to normal (chemo then surgery) there are limited clinical trials to refer to form an alternative plan. My surgeon has been amazing and is supporting with a second opinion. I am seeing another local oncologist this week to discuss, but will also refer onto Marsden or Christie’s from there if I wish.
Any information about how others treatment has gone with similar path to mine, would be very much appreciated.
