I know people will probably think what am I doing here if I’ve got got a diagnosis yet. But there seems to be very little support out there that I’ve found so far for people like me. There life on hold, in limbo, absolutely terrified of what’s to come.
So I hope it’s ok to share my story so far.
I’m 45, overweight, don’t drink, have never smoked, but haven’t got a very good diet. I've been having what I thought were some gyne issues with pain deep in the left side of my pelvis. GP said it’s where my ovaries are and referred me for a scan for suspected fibroids. Last Sunday the pain became quite intense and I just asked my husband to take me to A&E. I don’t know I just had a feeling something wasn’t right. They did a blood test and said my kidney function wasn’t great. Sent me for a CT scan that showed no kidney stone but my appendix looked a bit strange. They brought forward my gyne scan and that showed all my womb & ovaries to be perfectly normal.
So in a matter way the Registrar just said we need to do a colonoscopy to see what’s going on as you could have colon / bowel cancer. I was on my own as I just thought I was going for the gyne scan and not a lot else. Said they’d get it done in 2wks. So now im just sat here convinced I’ve got it.
You might think oh she’s just fearing the worst but if we look at the facts - my kidney function is low, my appendix attached to the colon looks “weird” on a CT scan and they’ve ruled out all the simple stuff. So what else could it be?
sorry to ramble on. I don’t really know where to go with what’s in my head. I don’t want to burden my husband by on about it all the time and I haven’t told my family yet as need to wait and see what I’m facing first. It’s just such an awful time waiting. And then I feel guilty because there are other people who have this disease who are not going to recover.
Seriously if you’ve bothered to get to the end there is no need to reply. I just need to let it out somehow. Thanks
