Anyone starting Xelox?

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Hi,

Just wondering if anyone is starting Xelox/Capox soon - as it would be nice to have some fellow chemo friends.

I’m a 41 yr old mum of 2.  I was diagnosed in July, I’ve had high anterior bowel resection and also a right lung wedge resection. It was also in 5 lymph nodes by the bowel tumour. 

I start Xelox on the 4th Nov. They want me to ideally do 8 rounds. 

Ive read all the tips on here for the side effects scared to start but im determined to stay as positive as possible. 

Bad timing going into winter with the cold but I’m going to buy all the heated blankets/ gloves/ socks I can get hold of!!!

best, Isabel 

  • Hi Isabel,

    Had my first treatment today with Capox and literally just taken the capecetebine. 52 year old female and my bowel cancer journey is on my profile ( diagnosed start of Sept, operation to remove half colon Sept 13). This is my first day of the 4 cycles I’m scheduled to have. 
    So far, I have definitely got tingly fingers and need gloves indoors as I kept forgetting and touching metal things! I also drank some cold water to take a tablet and I felt it go into my tummy and it really hurt for 20 minutes but then passed. My arm feels very sensitive along the vein where the drug went in, but it’s ok.

    If this is helpful, I can keep you posted about the effects as I move through the cycle. I have the genetic DPD deficiency, so the capecetabine is a reduced dose. 

    I was pretty scared too, but it’s much less scary now it’s happening. I have a positive outlook about it all because there’s a good 30 years of fun left in me and there’s even more in you.

    Take Care Sweetie and get those furry socks and fleecy blankets! Heart

    Nicnak

  • Hi Nicnak, 

    thank you for your message! I’m glad the first day for you has gone OK. Like you say I think the anticipation is making me feel more anxious. The side effects are better than having cancer at the end of the day. I totally feel like I have a good long life ahead as well. Just a blip right now!

    I’ll keep you updated when I start too, if we can be any support to each other. I’ve heard diff days are bad/ better will be good to compare.

    I’ve been told especially to moisturise and look after feet 

    good luck Two hearts

  • Hi Ladies,

    I have just completed my 2nd round, I would advise you bring a warm coat hat gloves for after your treatment. I got really tingley hands and feet and spread to my lips. 

    I'm stage 4 and it has spread to my liver  I'm keeping a positive attitude.

    My 1st treatment was a bit hard but I have coped much better on my 2nd one. I think you're never really prepared for it and everyone can have different side effects.

    I wish you well on your 1st round Bluebonny,

    nicnak 1st round done for you Clap tone2Clap tone2Clap tone2

  • Muscle
    how was your second round better out of interest?

    did you have a canula? And did tingly feeling last?

    we can do this

    keep well x

  • Yes I did have a canula, the sickness and tiredness wasn't as bad. 

    I had the tingling but again wasn't as bad.

    I think your first round you just don't know what to expect and how it will effect you.