Hi, new to the group, I was first diagnosed back in 2022, I’ve just had my sixth operation after having my second recurrence, so I’m now finding it very difficult to get excited for the “all clear” and struggling with the “what next”
Hi Razor, it's definitely very much one day at a time and the road definitely ends up with bends we don't expect doesn't it. I've had one of those weeks. What surgeries have you had? that's a lot! though sounds like you do have a good team hopefully if they're doing all that. I had a bowel resection and an ovary out earlier this year- I'm hoping to have something done with my liver though they've recommended not full surgery now- but awaiting news. Sending you good thoughts, it's impossible I think for people not in this situation to understand- well except clinicians who I find easiest to talk to about it
As you said one day at a time definitely, there are days I’m okay then just so tired. I had colon resection, PVE, right side liver removed, part of left lung removed, part of right lung removed, then lastly segment 3 of liver removed. I have three teams over two hospitals and all of them have been amazing. We all just have our fingers crossed for my next scan due in a couple of months. I hope all goes well with your liver surgery too x
yes, I find it easier to break down like that but sometimes I get a bit overwhelmed again. Wow that is a lot!that's amazing that you've got through all those though! so do you need anything further surgically/ post op chemo? They said this week they don't recommend surgery for me as I have the Braf mutation so the time off chemo is not recommended- but I am hopeful of ablation- yes I have my main hospital team who are amazing and then another trust team for liver stuff- I'm seeing them next week- thank you so much- hope all your treatment keeps going well
It’s a lot to go through Razor22 .
Purely an observation but my mum had two very intense years of surgery/chemo then she seemed to catch a break. To put it in context she had 67-69 in treatment . Then she got to 73 with one small met removed which she recovered very quickly from , then it did not surface again until she was 80 !
For some reasons what presented as very fast growing disease seemed to slow right down. I make no claims to understand cancer biology but she seemed to be able to keep it under wraps with her own immune system right through her seventies and her quality of life was good !
But we found it intense in the beginning and really felt for her .
Hope it is the start of a much longer period of disease free living and you can get on with living .
Court
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