Krukenbergs syndrome - stage 4 colon cancer or it may be.

Hi Cheekkat and a warm welcome to the bowel page. I hope KimLondon doesn’t mind me tagging her to see if she can help? x

Hello, no of course I don't mind. So yes I was diagnosed with primary bowel cancer with a krukenberg tumour on my ovary and liver mets last year. I started on chemo for bowel cancer to shrink everything. I had surgery in March on the bowel and ovary- both now out. I'm now on mop up chemo from that surgery and also to shrink liver mets to then work on them with surgery or ablation. It's very scary when you're first told but they can do surgery and lots of things (whether it is ovarian or bowel primary). There is also a surgery called HIPEC which you can find more information about on good sites like NHS or Macmillan sites. I always feel better when I've seen my team and know the plan. There are also facebook groups that I've found really helpful for knowledge and there are lots of people on there with ovarian/ peri mets- obviously I know you won't know whether to join an ovarian or bowel one yet but I think both would be very welcoming if you said you're awaiting. Sending you love and big hug x

Thank you so much for your reply.

  I'm 68  and feeling fairly low mood 

Seeing this is possibly not curable.

Wishing you all the very best of luck.

Hello, I'm 43 now, I was 42 when I was diagnosed. Yes I totally understand. I found speaking to Macmillan very helpful, they are a great support. There are a lot of new treatments coming through now so hopefully things can change- getting on treatment and starting to deal with it is good too. I really do feel much better for having a plan. Keep us posted and as I say do call the Macmillan line if you feel you can- they are ever so nice and really helped me.

I'm in contact with Macmillian nurses online.

How was the chemo?

Are you cancer free now.?

You can chat to their line too. Chemo I had one course of before surgery and I'm on it now for mop up. I still have mets in my liver currently- they're hopefully going to do surgery on them or ablation on them shortly- the chemo is to shrink them. 

Chemo has been okay- I've been quite lucky not any big problems so far- I've had covid once and I have some neuropathy and some nausea but you get given medication. I try to just do one cycle at a time and view it as a means to an end. 

The chemo really can shrink things and change the options so I really hope that can be so for you- I've read lots of stories in the facebook group for stage iv of people going from inoperable to operable 

Can you give me the name of those FB pages?

Glad to hear your treatment is going well.

You have given me some hope.

So there is the Bowel Cancer UK stage IV group and then there is Bowel Cancer Support Group UK. Thank you very much, I'm really glad it's given you hope and do keep me posted how you're doing

Ohh gosh I didn't know there was the possibility of inoperable  ....

not on the ovaries I think they are always operable- that tends to be on the bowel primary or liver and they use chemo to shrink thingst to make operations easier