Hubby’s MDT meeting was today

My husband had a high anterior resection on 29 April. Prior to that he had folfoxiri chemo from early Dec 23 to late Feb 24 which shrunk both areas of concern significantly.  He has primary bowel cancer with multiple bilateral liver mets.   Ended up being a 6 hour op and following some infections in staples was told bowel/colon was clear alongside 35 lymph nodes which is great news.  He coped well with chemo, op and recovery in general. Some good days and some  not so.  No stoma or ileostomy needed and BMs since generally ok.

Another liver MRI done post surgery.   Appt on Tues with liver specialists for next steps... surgery or not etc. Unfortunately peripheral neuropathy in feet has worsened since op for some reason ( probably just coincidental) but he is trying to cope and walks and cycles as much as he can to keep strong and keep circulation going.  Any advice on that would be great.

Stay strong ... worst bits have always been the waiting... once there is a plan the anxiety and fear settles a bit ( till the next scan etc).  

Take one bit at a time or it can be really overwhelming.  This site has been a godsend when you don't know what to do or ask next.

Good luck and sending lots of best wishes 

G 

PS his tumour was 10cm ( for info)

Hi G, thanks so much for your good wishes and for sharing how things have been for your own hubby after his surgery. I’m glad he’s coping as well as he can, it sounds like he’s doing a lot to help himself in terms of keeping his fitness going by walking and cycling and that’s amazing! Keeping active after surgery is important and I know that my hubby will need to do the same.

For my hubby, at least things are now moving forward for him after a very long month of waiting. It’s felt like that he’s been waiting forever for today’s MDT to take place.. He’s just so glad that a date for surgery has been decided and he can go into hospital, have it done and begin his own recovery.

This site has been a godsend for me too since I joined a month ago after hubby was first diagnosed. Just being able to come on and ask things, get a bit of advice from people who really understand because they’ve been there themselves has been a huge support.

Take care, wishing your hubby all the very best with his ongoing recovery.

Roses x 

Hey Roses. 

Glad to hear your husband has heard from the MDT so quickly. A 2cm primary and T2 staging is quite small , this is probably why they are going straight forward for surgery and radiotherapy is not needed. It all sounds pretty positive. 
With it being one tiny nodule on the liver and his primary being small, it does sound like it probably is an haemogynoma . 
I hope things start to get easier now for you both. 
X

Hi CxO,

Thanks so much. We will know more once we’ve spoken with the surgeon on Monday. Hopefully things will be ok with the liver MRI, we’ll just need to wait and see. At least things are moving now. 

Take care, 

Roses x

A wee update…hubby had his surgery carried out yesterday.

It was a very long and emotionally tiring day when I received a phone call from his anaesthetist to say the operation had gone well and he was heading into recovery…my head had been all over the place while hubby was in surgery. Thankfully, he says he remembers nothing at all after getting his anaesthetic! 

Tumour, bowel sections and lymph nodes were removed and sent to pathology for final staging which can take up to 8 weeks. Bowel resection was carried out (I think it’s called anastomosis) and both ends of bowel were rejoined without a stoma. The surgeon visited him today and said that he hopes it will heal up well. However, should there be any issues, hubby may still need an ileostomy which would be reversible… but while it’s still early days with everything, so far, so good. We are taking things just one day at a time; I’ve been in to visit him today, he’s eating a soft diet, sitting up in a chair in the ward and moving gently (as well as you can with a wound drain and catheter being in place). I’m so glad the surgery’s done and that hubby’s in the best place right now with all the doctors and nurses looking after him. 

Hey Roses. 
I have been thinking about your husband today. 
Im so glad everything went as well as it could have gone. 
At least the cancer is now out of him and in the bin so to speak. 
I hope he continues to do well and heal well. 
Bet its a massive weight off your shoulders. 
Sending love x

That’s lovely news roses26 and it all sounds to have gone well. He’ll find moving a lot easier once all the tubes come out over the next day or 2 then can look forward to coming home x

Thank you so much CxO  Yes, it’s a massive weight off both our shoulders and we can now focus on his recovery.

I’ll keep you posted on his progress. Take care.

Love Roses x

Thanks so much Karen I’ll keep you posted on his progress. Take care.

Love Roses x