Hi all,
So I'm awaiting results for my five year CT scan thorax abdomen pelvis on a watch and wait program.
In the mean time I have had a rash of blood spots on the back of my calf for a few weeks so I sent pictures of this to my GP who rang me today.
He reckons it is HSP, which is usually seen in children, but when seen in adults can sometimes be associated with cancer.
So that makes it a bit more stressful awaiting the CT results. However my policy is to assume the CT results are going to be OK unless I hear otherwise.
What will be will be and it is all part of the journey for a watch and wait patient.
Best wishes,
Jogey
Thanks Artsie.
So the CT scan had good news and a bit of uncertain news. Good news was that they found no cancer in any of the organs outside the rectum.
However they did find some thickening of the wall of the rectum which the radiologist said should be examined by MRI.
I actually had the same finding at last year's CT scan, and the subsequent MRI last year found no cancer. However I'll just wait to have the MRI and see.
I also had a blood test yesterday for HSP, a form of blood rash which can sometimes happen when adults have cancer. So another bit of uncertainty.
All business as usual for a long term watch and wait patient. Uncertainty is pretty much the name of the game.
In the mean time, I plan on enjoying every day.
You all have a good one too
Great attitude Jogey
Don’t let it interfere with your life.
Cancer is a little ghoul
I went for mammogram two days ago she saw my scarring from my lobectomy and stoma and asked if I was I remission
I surprised myself answering. I don’t have to think about it until September. Ha ha
I put it on the calendar and forget it until it happens
I used to be a terrible worrier I have really changed.
A wise lady once said to me “ if I can’t fix the problem I don’t worry about it, I give it to someone that can fix it.”
Thank Goodness for our NHS
Treat yourself to something nice
Best wishes
Ann
Well on the whole a good scan for sure but until they establish if it’s your new normal it seems they are going to remain vigilant in that area which I guess is a good thing if not a complete pain but it’s a great clinical team you have and they are taking no chances .
I am 100% certain it’s that level of diligence that has kept mum here for so long .
Court
Helpline Number 0808 808 0000
Thanks Court, so the CT scan came back with thickening around the circumference of the bowel so they've ordered
an MRI as this can examine it more closely and accurately. So am awaiting MRI date now.
At the same time am awaiting HSP results and interpretation from GP.
I believe it was the poet Keats who said we have to learn to live with uncertainty and that's one of the key skills I've learned as a cancer patient on watch and wait.
I hope you all have a great weekend
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007