Hello everyone, I've message her recently but to update (I think I need to do my profile with more detail!) I have primary bowel cancer that's spread to my ovary (already had one removed in the past- my cancer was found in routine screening ) and liver- the current plan is I'm having Folfox to shrink the primary mass and hopefully other bits then have surgery to remove the bowel and ovarian stuff- then liver surgery to remove the liver mets (or poss the other way aroudnd surgically) we'd been awaiting the gene testing and yesterday the team updated me that I have a BRAF mutation which I understand 10% of people have- apparently being a younger woman (early 40s) and it being right sided is all quite classic (though I also read older women online so maybe it's just more women overall). I can find stuff about BRAF online but am obviously always wary of Dr google; I cannot find very much on the forum here about BRAF and bowel cancer- I see that there is quite a lot for BRAF and melanoma which is obviously not me. Does anyone have any experience of this? I understand it means chemo sometimes works less well, hence they are thinking of changing my cocktail of chemo and or it seemed like the previous mention of longer chemo for up to 6 months prior to surgery might be less likely. As ever the hospital have been wonderful and are ordering a CT to see how the chemo is working so far even though it's quite early (had 3 infusions so far). I have my next infusion this weekend so I'll have had 4 Folfox when I have the CT. Any personal experience or links gratefully received. Thank you in advance and I hope everyone is having a good week and doing okay in themselves. Kim
