Any advice or support please

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Hi everyone, 

On the 29th December i was told at a colonscopy that a 5cm tumor was found in the sigmoid area 

I'm currently still in this dreaded waiting time between being told I have cancer & finding out if its spread & what happens next! (Feels like hell on earth!!!) 

Ct scan and MRI scan all completed 

MDT meeting was Monday just gone and I have been booked in for a meeting with the consultant Friday this week & colorectal nurse next week & they also gave me a date for surgery which is the 31st!   

I'm extremely anxious and suffer with Health anxiety too. 

So much so I almost couldn't have much initial colonscopy as my blood pressure was  too high! My anxiety literally pushed it up to 180/100 that's how scared and frightened I get Disappointed relieved  

Anyway I said I cannot go into that meeting with potential news about spread as I'm so frightened & worried I will have a panic attack or something!  So I asked if the colorectal nurses could tell me if my scans were okay apart from rectal cancer. 

They were so lovely & understanding and all they said was my CT can looked okay.... which was obviously a huge relief. I did ask her if there was a still a chance I could go into the meeting Friday & still be told the cancer is elsewhere and she said I don't think so. She did say they wouldn't know full info until surgery had taken place with histology etc which I fully understand. 

So i have taken that as a positive but why do I I still feel nervous & scared. 

I don't want to get blindsided I that meeting with more bad news..... 

I wondered if it was a good sign that I am booked straight in for surgery? 

I know I will know more Friday but these last 2.5 weeks have been the hardest of my life. 

I have 2 young children & have been so worried about the future & outcomes of all this 

I know I sound like an anxious mess..... sorry... Confounded

But I really appreciate any words of wisdom and help & support 

Thank you so much 

Lisa-Marie  

 

 

 
  • Hi sorry you are going through this. Once you have the meeting over with it will feel a lot less, even if the news is not as positive as you hope for it is still easier than the not knowing because they always have a detailed plan moving forward.

    My husband had emergency surgery and we didn't think he would recover as his surgery was risky and I was very anxious and having panic attacks. My GP prescribed Propanalol ( beta blockers) that slow your heart rate and I could take them 3 times a day so especially on big days like oncology meetings and scans i would take them and it really helped me be able to focus on him and what was being said. 

    I could still drive and they didn't make me feel groggy they just reduced my anxiety by half at least. Might be worth asking the question if you can take it. 

    Don't worry about feeling like an anxious mess, we have all been there. 

    Take care and good luck for Friday. Grin 

  • Hi  

    About 1.5yrs ago I was in a similar situation.

    During my colonoscopy, a large tumour in my sigmoid colon was found and it was confirmed as cancer there and then. It was a massive blow and 3 weeks later I was in surgery.

    The time from diagnosis to 1st treatment (for us, surgery) can feel the most surreal and probably the toughest time of the journey.

    I found this Bowel Cancer UK publication really helpful to start gain knowledge and realise that it is a well trodden path:

    https://bowelcancerorguk.s3.amazonaws.com/Publications/YourPathway_BowelCancerUK.pdf

    I hope that you find some reassurance from the contents.

    Some people name their tumour, so that once it's removed they can talk about "XXX being rid". I found relief and strength from doing it.

  • Hi Lisa-Marie,

    I’m new to the forums, and a bit behind you in terms of diagnosis (my CT is this Sunday). Your feelings sound really familiar to me, I’ve worried about my health for most of my life, and I’m here awake trying to get my mind off worse case scenarios.

    I’m the short time I’ve been living with this I’ve found that the thing that helps most is talking to friends and family and being honest about where you are and what you’re afraid of. 

    For your meeting remember you’ll be with people who have seemingly boundless expertise and compassion and they will help you through whatever happens, but it sounds like there are some positive indicators there.

    Wishing you all the best, hope the meeting goes well, and remember there are always people around to listen and support you - even strangers on internet forums Slight smile

    All the best,

    Rich

  • Hi Lisa Marie,  I was diagnosed about 2 years ago and I agree it's the worst feeling in the world, I felt pure terror and that's no exaggeration!    On top of that you've got to wait for results from scans, blood tests and goodness knows what and it all takes its toll on the nerves.  My GP gave me some diazepam to help  me get through it and I also visited my local Maggie's centre for support.  I also had counselling through MacMillan....I have to say there is lots of support available and it does help.

    As RichN has said it sounds like you've had some positive indicators from the colorectal nurse and from experience I've always found the nurses and doctors to be absolutely honest with info' giving.  I really don't think they would have said what they did if it wasn't true.  

    At this stage they can't get a full and complete picture until they operate and then examine the cancerous growth, which you've said that you understand.  In my case the surgeon staged my growth as stage 3 before surgery but then afterwards when it was sent for histology it was down graded to stage 2 so fingers crossed, that may happen to you too.

    As everyone who's experienced this knows it can be a roller coaster of emotions but if you can, just take one day at a time and only deal with the information you have today, not all the what ifs and of course keep away from Google!  

    Hang in there, I always repeat to myself the mantra, "This too shall pass"

    Keep us posted if you can, there's lots of lovely people on this forum with so much experience, knowledge and support.

    Best wishes

    Jo  x