Endoscopy results and wait times.

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Good evening,

My husband had a CT scan and MRI after having chemoradiotherapy and chemo for bowel cancer.

They told us the tumour had shrunk dramatically and would now be able to have surgery.

He has just had an MRI for his liver as they said they could see something but they aren't worried.

Today he went for an endoscopy where the notes that were given him it said the cancer was still there, but also said something about polyps further up from the tumour. We thought the surgeon may have had a chat with us today but he hasn't and he has taken more biopsys.

We now have to wait yet again, they will be having another MDT meeting and then we may find out the next stage.

Has anybody else been through all of this? It feels like one step forward ten steps back. I don't know how much more I can take.

I just want it all over with now, it has been one hell of a bad year. 

Thanks for all the help you have given me, I don't know what I would have done without you all Kell xx

  • Hi  It’s so stressful waiting in between meetings and results isn’t it? Please don’t look on it as a step back - I think it’s more a step forward towards surgery? 
    The liver thing could well be a haemangioma? I had one picked up on my initial pre treatment scans and they are very common apparently. They are harmless cysts which most people go through life with being none the wiser unless they have this sort of scan.

    I’m not sure about the polyp situation but I’m guessing that they are aware of other polyps and are checking that none of them need removing at the same time as the tumour? Polyps are generally harmless but some can turn cancerous over time so they’re probably erring on the safe side and, any that they’re worried about, can be dealt with here and now

    Its tough but you’ve coped so far so take a deep breath and try and get your hubby as fit and healthy as possible for the op so you can get what’s left of that tumour in the bin. You can do this and you know we’re always here when you need a virtual hug or hand hold

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Hi  

    I feel for you . You so much want to progress to the surgery for sure . What I have discovered about surgeons , they can be meticulous with details prior to surgery and like everything fully investigated. Even my own mums oncologist insists on baseline scans again if she takes over a case . 
    However all of a sudden they are ready and before you know it surgery is scheduled so I would have a wee bag packed too . Sometimes it’s also to determine if they need to be more extensive. That can also be helpful in getting everything in one go .

    Although upsetting in my humble opinion I always saw it as a a sign of a good team and although it was distressing it was in equal measures reassuring that I could trust them in theatre with their attention to detail . 
    I wish him every success and lots of strength for you both to get to that theatre suit . You end up with a guilty feeling as you drop them off . So glad it’s finally happening but it is still surgery !!

    Take care ,

    Court x 

    Helpline Number 0808 808 0000

  • Thank you for your reply,

    It has been such an emotional rollercoster this past year I just want to get it out of the way.

    My husband has an appointment with the surgeon on Thursday 28th Dec hopefully the polyp and liver situation is nothing at all to worry about and we get some good news regarding the surgery.

    I just feel like I am going crazy.

    Have a great Christmas Kell xx

  • Hi thanks for your reply Court.

    I have been thinking about what you have said regarding the surgeon etc, I am glad they are doing as much as they can so my hubby can get the best outcome.

    It is so stressful and knowing we still have to wait to hear about test results is the worst feeling.

    Hopefully we have more info at the appointment with the surgeon next week.

    Have a nice Christmas Kell xx